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SMS Foundation UK

Supporting SMS families for a positive future

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We are a small charity that supports families living with Smith-Magenis syndrome (SMS)

Never feel isolated or alone. Call our helpline and leave a message: 0300 101 0034 (we aim to respond to messages within 48 hours).

Newly Diagnosed?

News & Events

New SMS Logo

Smith-Magenis Syndrome Foundation UK – EGM Notice

changing charity structure image

Our 2020 Vision

Graph showing sleep patterns in SMS

Melatonin Application Rejected by SMC

Prof Chris Oliver presenting at the 2017 SMS Conference

Outline 2019 Conference Schedule

SMS Child asleep whilst up at counter

Sleep Safely – Your Help Needed!

Board of Trustees and Ann Smith on stage at the 2017 SMS conference

Dates for 2019 Conference Announced

19 SMS Dads ready to take on the 3 Peaks Challenge

Team of SMS Dads Complete 3 Peaks Challenge

Don’t get cut off

The Conker train at Conkers

SMS Foundation 2018 AGM and Members Event

SMS families meeting together to SMS World Awareness Day and 25th Foundation anniversary

World SMS Awareness Day and our 25th Anniversary

Bright Stars Shining a Light video cover image

Bright Stars Shining a Light – A Video about living with SMS

Sunlight and Nightshade Video cover

Sunlight & Nightshade – A Video About SMS Behaviours

Video cover image for film title Sweet Dreams & Survival

Sweet Dreams & Survival – A Video about SMS Sleep

Video front cover for film That Defining Moment

That Defining Moment – A Video about Diagnosis

Jeans for Genes Day

A huge “Thank You” to our Jeans for Genes fundraisers

Joanne Martland with her son Louie

Mum speaks of son’s genetic disorder for Jeans for Genes Day

Edward Leeann Will William and Lily Stevenson

The Marlborough family of Lily Stevenson have been chosen to front a campaign for national charity Jeans for Genes

Sue, Riley and Mick Pearson with Ann Smith

Video star Riley helps make people aware of syndrome

New SMS Logo

The Story Behind the New SMS Foundation Logo

Trustee Nigel Over holding SCVO Award

SMS Trustees Working with Enable Scoop Charity Award

Nigel and Matthew Over thank printers for publishing SMS Booklet

Newly Updated SMS Booklet Published

The St. John's Hotel Solihull venue for the SMS conference 2017

Dates for SMS Conference 2017 Announced

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SMS Foundation UK logo

Never feel isolated or alone. Call our helpline: 0300 101 0034

Please note: This is an answer phone service that will alert us as soon as a message is left. A member of the team will call you back as soon as possible – we aim to respond to messages within 48 hours.

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Become a Member of The SMS Foundation UK

Connect with SMS families in your region and be the first to receive updates on any social meetings, conferences, and fundraising events going on!

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Registered UK Charity (CIO) 1186647

Scottish Charity (SCIO) SC050921

Registered with the Fundraising Regulator

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