Hazel Wotherspoon – Chair Person
Hazel Wotherspoon is a mum of 4 young adults, 3 of whom have significant disabilities; the 22 year old having SMS.
Hazel worked as a physio, mainly paediatrics for 27 years before leaving work to become a full time carer. She has been involved with the Foundation many years first as a member and later as a trustee. Hazel strives to increase awareness and understanding of SMS , especially amongst professionals. Her prime aim is to support families in any way they need.
Emma Riddell – Trustee
Emma is a mother of three children, Harry who is aged 15, Grace (SMS) who is 10 and Charlie who is 7 years old, Emma is currently a fulltime Mum and lives with her husband Mark in Birmingham. She is passionate about raising awareness and fundraising for the foundation.
Nick Hunt – Trustee
Nick Hunt is an IT consultant and father of a boy and girl. Samuel his eldest child has SMS. Nick is highly motivated and looking forward to helping the foundation raise awareness and providing access to information and resources.
Mick Pearson – Trustee
Mick is the newest trustee to the Foundation and will hopefully bring a fresh incentive and new ideas. He is very proactive within the foundation giving support and life experiences to families new and old.
Mick’s drive is to support families newly diagnosed with Smith-Magenis Syndrome and seeks to connect with them in his unique way.
Mick also supports dads living with Smith-Magenis Syndrome and assists in helping them to connect with each other, he is also keen to promote awareness and fundraising for children and adults with Smith-Magenis Syndrome. His son Riley was born in 2011 and diagnosed in 2014
Laura Maddocks – Trustee
Laura is mum to Jude, who was diagnosed with SMS at age 8. They live in Hampshire. Laura works full-time in the telecoms sector and has had a fair bit of experience working with the Local Authority Education and Social Care teams to raise awareness of Smith-Magenis Syndrome and SEN provision. Laura is passionate about ensuring all children with SMS receive the necessary support and understanding in schools and colleges.