Our Vision:
Every person with Smith-Magenis Syndrome shall have a fulfilling life within a supportive and understanding community.
Our Mission:
The Smith-Magenis Syndrome (SMS) Foundation UK shall be at the heart of our community of individuals, families, carers and professionals living and working with Smith-Magenis Syndrome and we will be the first point of contact for those seeking information and support. Nobody should ever feel isolated or alone. We value every person affected by this genetic disorder and shall empower them to reach their full potential as respected members of society.
Our Philosophy:
An old proverb gave us inspiration… “It takes a village to raise a child”.
We understand the complex needs of a person with SMS and recognise what it takes to give them the support they need.
It takes a community of people including family, friends, peers, doctors, nurses, practitioners, and teachers.
Our Values:
| Compassion: | Caring, supportive, advocacy, empathy, sympathy |
| Ambition: | Empowering, visionary, future, encouragement |
| Integrity: | Conscientious, honest, ethical, responsible, trust, confidentiality |
| Knowledgeable: | Factual, researched, considered, informative, objective |
| Respect: | Understanding, non-judgemental, transparent |
| Equity: | Inclusive, fair |
| Sustainable: | Continuity, future, accountability, governance, well managed |
| Community: | Teamwork, togetherness, friendship |