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SMS Foundation UK

Supporting SMS families for a positive future

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We are a small charity that supports families living with Smith-Magenis syndrome (SMS)

Never feel isolated or alone. Call our helpline and leave a message: 0300 101 0034 (we aim to respond to messages within 48 hours).

Newly Diagnosed?

Fundraising & Events

Take part in an event with team SMS! Your support makes all the difference in helping us support families living with SMS. Whatever challenge you take on, we’re here to support you all the way! Please see our latest fundraising events for supporters to take part in.

Current Challenge and Fundraising Events

London Landmarks 2027

  • 13.1 miles
  • Sunday 4 April 2027
  • £350 fundraising target
  • 9 places available
  • email fundraising@smith-magenis.co.uk to register interest

2027 Double TCS London Marathon

Are you a keen runner? Do you want to challenge yourself to the world’s most popular marathon, which showcases the best of London?

For the first time ever, the TCS London Marathon will be a TWO DAY EVENT in 2027!

2027 will see the Double TCS London Marathon land in London – along with the established marathon on Sunday 25 April 2027, there will be an additional marathon taking place on Saturday 24 April 2027 – taking in the same iconic route and landmarks of the capital! Starting in Greenwich, the route passes landmarks including Tower Bridge and Canary Wharf before the finish line on The Mall, with a view of Buckingham Palace. It’s a relatively flat course with personal best potential!

The SMS Foundation UK have 4 available places in the Saturday marathon (please note: we have no available places in the Sunday marathon)

If you are interested in running this iconic event to raise funds and awareness for the SMS Foundation UK, please complete the application form here and let us know your motivations for joining Team SMS in this amazing challenge! TCS London Marathon 2027 application form SMS UK – Saturday 24 April 2027

Please note: applications will close on Friday 31st July 2026 and the successful applicant will be notified by Friday 14th August 2026. You must be at least 18 years old to run the London Marathon, and we ask the successful applicant to commit to a minimum fundraising pledge of £3000.

If you have any questions, please email the Fundraising team on fundraising@smith-magenis.co.uk. We look forward to your applications!

Great Manchester 10k

  • 10k
  • Sunday 23 May 2027
  • £150 fundraising target
  • 3 spaces available
  • email fundraising@smith-magenis.co.uk to register interest

Great Manchester Half Marathon

  • 13.1 miles
  • Sunday 23 May 2027
  • £350 fundraising target
  • 2spaces available
  • email fundraising@smith-magenis.co.uk to register interest

Already have a place in an event? You can still support us and join Team SMS.

SMS Foundation running vest new design for 2026

By joining Team SMS, you will be helping to support the 300+ families we know to be living with SMS in the UK today. To support you in your fundraising, you will receive:

  • an SMS Foundation UK technical running vest
  • a fundraising pack to help take your challenge to the finish line
  • a friendly team here to support you every step of the way
Get in touch to join Team SMS

Fundraising Resources

Planning a fundraising event? To help support your event the SMS Foundation can provide you with a fundraising pack that includes a selection of documents designed to help you raise money and awareness including a sponsorship form, press release template, donations form, and template letter for prizes and donations.

Other resources to help raise awareness for your event including t-shirt(s), baseball cap(s), stickers and balloons can be sourced, please get in touch to discuss what you need for your event.

If you wish to download the documents available in our fundraising packs please use the following links below.

Sponsorship Form
Press Release
Donation Form

A-Z of Fundraising Ideas

A – auction, abseil


B – book sale, bungee jump, bingo, bike ride


C – car wash, car boot sale, coffee morning


D – disco, dress down day, donate, diet


E – ebay sale, egg hunt, 80’s night


F – fun run, face painting, football match


G – garage sale, garden party, golf day, games evening


H – hair wax or shave, halloween party/disco


I – it’s a knock out


J – jumble sale


K – karaoke night


L – lottery


M – marathon, murder mystery evening, mobile Phone (donating old mobiles)


N – name that tune, no smoking, no drinking


O – outdoor pursuits


P – parachute jump, poetry night, pampering party, pub crawl


Q – quiz night, question of sport


R – race night, raffle, recipe book, rugby match, recycling (ink cartridges)


S – swimming gala, salsa night, summer ball, seventies night, sponsored events, sports tournament, silent auction


T – treasure hunt, tombola, talent show


U – upside-down challenge, unwanted gifts sale


V – valentines ball, valet service, variety show


W – wine tasting, Wii tournament, walkathon


X – xmas party, X box gaming tournament


Y – yes day, yellow day


Z – zany clothes day

SMS Foundation UK logo

Never feel isolated or alone. Call our helpline: 0300 101 0034

Please note: This is an answer phone service that will alert us as soon as a message is left. A member of the team will call you back as soon as possible – we aim to respond to messages within 48 hours.

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Connect with SMS families in your region and be the first to receive updates on any social meetings, conferences, and fundraising events going on!

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Registered UK Charity (CIO) 1186647

Scottish Charity (SCIO) SC050921

Registered with the Fundraising Regulator

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