Activities and Events
Information & Literature
Emotional Support & Advice
Support for Newly Diagnosed
Professional Advice & Networks
Support research into SMS
Provide small grants
Helping families through small grants and advocacy
Our 5-year Strategy for a Positive Future
In early 2023, we took the initiative to conduct a survey among the caregivers of our SMS community to gather direct feedback on the issues and challenges they are facing. Over 100 people took part in the survey, and the insights we gathered have been key to understanding what their needs are and developing a strategy that effectively addresses them. The survey revealed some eye-opening results, including the following statistics:
In response to these findings, we have developed a five-year strategy aimed at addressing these challenges, focussing on the following key initiatives:
- Prioritising community needs
- Knowledge enhancement
- Building collaborative networks
- Strengthening our team
- Growing our supporter base
- Ensuring sustainability
- Enhancing engagement and branding
Impact and Purpose Theory of Change
Our purpose is to improve the quality of life of everyone living with SMS through awareness, understanding, and a supportive community. We aim to achieve this by ensuring that every person with SMS is surrounded by caregivers and professionals who are well-equipped and empowered to meet their unique needs.
Our Four Core Programmes
Programme and Project Delivery
Our charity is proud to be small and agile. Over the next five years, we have developed a flexible schedule of programme delivery that is prioritised based on our current finances, resources, and ambitions for growth.
Our adaptability allows us to prioritise and execute programmes and services while being mindful of our financial constraints. We are dedicated to making the most out of our resources, ensuring that funds are utilised in a way that positively impacts our beneficiaries and creates meaningful change in our community.
As a small charity, we understand that adaptability is crucial in the dynamic landscape of the third sector. There may be occasions where external factors or unforeseen circumstances require us to adjust our timelines for project delivery.