Yorkshire Three Peaks Challenge
A new fundraiser to undertake the Yorkshire Three Peaks Challenge has been set-up by Craig Thomas, …
Five top tips to help maintain wellbeing during lockdown
Maintaining wellbeing – both mental and physical – is incredibly important for children and adults …
SMS Demographic Profile Study is launched
The Smith-Magenis Syndrome (SMS) Foundation UK is pleased to announce the commencement of a …
Sunset, Moonlight and Sunrise – Teddy Bear’s Picnic
Date: Saturday 20th June 2020Time: All-day event (at a time convenient for you)Venue: Your …
Early summer newsletter
Connecting Families | Raising Awareness | Building Futures Our early summer 2020 newsletter is here! …
The 2.6 Challenge
We would like to thank all of our supporters who recently took part in the 2.6 Challenge to raise …
Competition – Design Genny Bear
Genny Bear is still missing, but we don’t know what she looks like. Genny Bear is named after the …
Songs Make Smiles Concert
SMS Foundation ambassador Ciara Harvie will be holding a Facebook Live concert (go to Ciara Harvie …
Launch of #SMSBearHugandBeHugged Campaign
The #SMSBearHugandBeHugged fundraising and awareness campaign has been launched by the SMS …
Our Spring 2020 Newsletter
Connecting Families | Raising Awareness | Building Futures Welcome to our Spring 2020 newsletter …
Emergency hospital documents for download
Going into hospital is never an easy time for anyone, but for someone with a learning disability and …
The Smith-Magenis Syndrome (SMS) Foundation UK introduces Helen Hargrave as our Fundraising Manager
Having worked in the charity sector since 2010, Helen has spent the past five years in senior …
Information and Communications Manager Announced for Smith-Magenis Syndrome (SMS) Foundation UK
The Smith-Magenis Syndrome (SMS) Foundation UK introduces Leeann Stevenson as our Information and …
CEO Announced for The Smith-Magenis Syndrome (SMS) Foundation UK
For over 35 years, Nigel Over has been involved in the running of, or contributing towards numerous …
Charity Commission approval for CIO
Following the vote by members in favour of converting the Foundation from an unincorporated …
Ciara Harvie becomes Charity Ambassador For SMS Foundation
Sensational Mezzo-Soprano Ciara Harvie becomes charity ambassador for the Smith-Magenis Syndrome …
Smith-Magenis Syndrome Foundation UK – EGM Notice
The Trustees of the Smith-Magenis Syndrome (SMS) Foundation UK are calling an Extraordinary / …
Our 2020 Vision
Every person with Smith-Magenis Syndrome shall have a fulfilling life within a supportive and …
Melatonin Application Rejected by SMC
The Scottish Medicines Consortium (SMC) has rejected the application to recommend prolonged-release …
Outline 2019 Conference Schedule
We are pleased to publish our outline schedule for the 2019 conference. Further details of the …
Sleep Safely – Your Help Needed!
The SMS UK Foundation has commissioned a project to understand the requirements for sleeping safely …
Dates for 2019 Conference Announced
The 2019 SMS Foundation UK Conference Friday 3rd May – Monday 6th May Following the successes of our …
Team of SMS Dads Complete 3 Peaks Challenge
On 23rd August, a group of 19 Dads that have children with Smith-Magenis syndrome completed the epic …
Don’t get cut off
The General Data Protection Regulations, which are a government law, are changing on 25th May 2018 …