• Menu
  • Skip to primary navigation
  • Skip to content
  • Skip to footer

Before Header

  • Home
  • About
    • History of the Foundation
    • Meet the Trustees
    • Our professional board
    • How We Help
    • Small Grant Applications
  • Become a Member
    • Family Membership
    • Professional Membership
  • Contact Us
  • MAKE A DONATION

Smith-Magenis Syndrome Foundation UK logo

Connecting Families | Raising Awareness | Building Futures

Header Right

Smith-Magenis Syndrome Foundation UK

Connecting Families | Raising Awareness | Building Futures

Registered UK Charity 1072573 | Registered Scottish Charity SC044841

  • What is SMS?
    • Overview & Characteristics
    • Diagnosis
    • SMS Personality
    • Sleep Matters
    • Living with SMS
    • Health
    • Frequently asked questions
  • Information
    • A Guide to SMS Booklet
    • Documents to Download
    • External links
    • Videos
  • Conference 2019
  • News & Events
  • Get Involved
    • Fundraising Ideas
    • Sponsor My Smile Campaign
    • Donate
  • What is SMS?
    • Overview & Characteristics
    • Diagnosis
    • SMS Personality
    • Sleep Matters
    • Living with SMS
    • Health
    • Frequently asked questions
  • Information
    • A Guide to SMS Booklet
    • Documents to Download
    • External links
    • Videos
  • Conference 2019
  • News & Events
  • Get Involved
    • Fundraising Ideas
    • Sponsor My Smile Campaign
    • Donate

News & Events

SMS families meeting together to SMS World Awareness Day and 25th Foundation anniversary

World SMS Awareness Day and our 25th Anniversary

It’s World Smith-Magenis Syndrome Awareness Day, and the SMS Foundation UK are also celebrating our 25th anniversary – DOUBLE CELEBRATION! Across the UK the SMS Foundation have been encouraging and helping to fund parties so that families can connect, share stories and celebrate life living with SMS. A number of events have been organised by …

World SMS Awareness Day and our 25th AnniversaryRead More

Bright Stars Shining a Light video cover image

Bright Stars Shining a Light – A Video about living with SMS

Week 5, and last but by no means least, the final film in our series! Bright Stars Shining a Light is a video about living with someone with Smith-Magenis syndrome, and in this film we asked a number of different families the following questions: What do they like to do for fun? Describe your child …

Bright Stars Shining a Light – A Video about living with SMSRead More

Sunlight and Nightshade Video cover

Sunlight & Nightshade – A Video About SMS Behaviours

Week 4 and we are delighted to release the fourth film in our series. Sunlight & Nightshade is a video about some of the behaviours associated with Smith-Magenis syndrome, and in this film we ask a number of different families the following questions: Can you tell me the best two things about living with or …

Sunlight & Nightshade – A Video About SMS BehavioursRead More

Video cover image for film title Sweet Dreams & Survival

Sweet Dreams & Survival – A Video about SMS Sleep

Week 3 and we are delighted to release the third film in our series. Sweet Dreams & Survival is a video about the sleep difficulties associated with Smith-Magenis syndrome, and in this film we ask a number of different families the following questions: Describe their bedroom or night time routine Do you receive much support …

Sweet Dreams & Survival – A Video about SMS SleepRead More

Video front cover for film That Defining Moment

That Defining Moment – A Video about Diagnosis

In the lead up to the international SMS awareness day (17th November), each week during October, the SMS Foundation UK are releasing a short film about living with Smith-Magenis syndrome. The next short film in our series is titled ‘That Defining Moment’ and broadly focuses on the diagnosis and early planning aspects of Smith-Magenis syndrome. This …

That Defining Moment – A Video about DiagnosisRead More

Jeans for Genes Day

A huge “Thank You” to our Jeans for Genes fundraisers

We would like to say a huge “Thank You” to all those that helped to support last weeks Jeans for Genes Day and the Smith-Magenis Syndrome Foundation. The day was a huge success as schools and workplaces pulled on their jeans to raise awareness and funds for people with genetic disorders. Some of the schools …

A huge “Thank You” to our Jeans for Genes fundraisersRead More

  • « Previous Page
  • Page 1
  • Page 2
  • Page 3
  • Page 4
  • Page 5
  • Next Page »

Footer

Contact Us

BCM Smith-Magenis Syndrome Foundation
London
WC1N 3XX
Tel: 0300 101 0034

Please note: This is an answerphone service that will alert us as soon as a message is left. A trustee will call you back as soon as possible – we aim to respond to messages within 24 hours.

Follow Us

  • E-mail
  • Facebook
  • Twitter

Make a Donation

MAKE A DONATION

Copyright © 2019 Smith-Magenis Syndrome (SMS) Foundation UK · Privacy Policy · SMS Disclaimer