The Smith-Magenis Syndrome (SMS) Foundation UK is pleased to announce the commencement of a study to provide a definitive demographic profile of syndrome diagnosis across the UK. This is to assist the charity in: Establishing the actual diagnosed population with Smith-Magenis syndrome. Incident rate is estimated at 1 in 15-25,000, which would suggest up to 4,500 people in …
News & Events
Sunset, Moonlight and Sunrise – Teddy Bear’s Picnic
Date: Saturday 20th June 2020Time: All-day event (at a time convenient for you)Venue: Your home/garden (or a socially-distant space) Get involved, raise awareness, and support your SMS Foundation. There are three different ways you can join-in, including: 1. Order an SMS Picnic Box & Fundraising Pack Our SMS Picnic Box is packed with fun things to …
Sunset, Moonlight and Sunrise – Teddy Bear’s PicnicRead More
Early summer newsletter
Connecting Families | Raising Awareness | Building Futures Our early summer 2020 newsletter is here! Providing you with the latest information from the Smith-Magenis Syndrome Foundation UK, this edition includes the following: Our community support Zoom calls Design ‘Genny Bear’ competition Information and Support Service update Fundraising during Coronavirus Mia’s story How our funds can help …
The 2.6 Challenge
We would like to thank all of our supporters who recently took part in the 2.6 Challenge to raise money for The Smith-Magenis Syndrome Foundation UK. The total amount raised collectively for charities is £10,126,618.49. The 2.6 Challenge is now closed. The 2.6 challenge was set up as a response to help save charities during …
Competition – Design Genny Bear
Genny Bear is still missing, but we don’t know what she looks like. Genny Bear is named after the ‘geni’ in Magenis. What we do know is that she is very special to Smith-Magenis syndrome and her appearance and outfit will be significant too. We need your help! Can you help us by drawing what …
Songs Make Smiles Concert
SMS Foundation ambassador Ciara Harvie will be holding a Facebook Live concert (go to Ciara Harvie – Music’ Facebook page) on Sunday 3rd May at 4 pm (BST). What better way to shake off the Covid-19 blues and ‘Let it Go’ with family, friends and beautiful music – all from the comfort of your home! …