Disability History Month: SMS and Our Foundation
Disability History Month offers a valuable opportunity to celebrate the stories of individuals, …
News & Events
Meet the Cobby Family: Their Life with SMS in Ibiza
Since getting a diagnosis the Cobby family have gone above and beyond to raise awareness for SMS and …
Webinar: A Guide to the EHCP Process
Date: Wednesday 4th December 2024Time: 19:00 – 20:00 Details A guide to navigating the process …
Webinar: Power of Attorney and Deputyship (Past Event)
Tuesday 29th October 2024 19:00 – 20:00 We invite you to join us for a webinar covering the …
A Carer’s Journey with Smith-Magenis Syndrome
As part of Carers Week (10th – 16th June), we share the story of Laurie Grainger and her …
Mount Cook Weekend – Schedule of Activities
We are pleased to share the outline schedule for our weekend away at the Mount Cook Activity Centre …
Supporting Undiagnosed Children’s Day
Earlier this week, we posted a brief survey on our Facebook page, posing the question, “What …
Katherine’s Climb and the Bond of Sisterhood
As we celebrate National Siblings Day, we also shine a spotlight on the extraordinary bond shared …
SMS Family Adventure Weekend
We would like to provide further information about our national event this year at Mount Cook …
Breaking Tradition: SMS Foundation’s Exciting Family Adventure Weekend in 2024!
For over a decade, the SMS Foundation UK has been uniting families living with Smith-Magenis …
The SMS Foundation UK’s Rebranding Journey
Introducing a Fresh Look for 2023 We are thrilled to unveil our rebranded identity, marking a …
Supporting SMS Families for a Positive Future: Our 5-Year Development Strategy
At the heart of our small charity is a big vision we are working tirelessly on to support families …
Recognising Nigel Over’s dedication to The SMS Foundation: Our heartfelt appreciation
It is with gratitude that we acknowledge the contributions made by Nigel Over during his time as …
Ellen Wotherspoon and her remarkable sporting journey
At the SMS Foundation UK, we take immense pride in celebrating individuals who are dedicated to …
Louie Martland: Thriving in the World of Hospitality
Meet Louie Martland, a remarkable 17-year-old from Wigan, Greater Manchester, who has shown …
Bridging the Gap: Insights from the SMS Community Survey
In the pursuit of a more inclusive and supportive future for individuals and families living with …
Elizabeth’s Inspiring Journey: Marching with Confidence on Armed Forces Day
At just 16 years old, Elizabeth Dudley from Belton in South Yorkshire has proven that determination …
Lily’s Dream Comes True: A Remarkable Work Experience Journey
At the age of 16, Lily Stevenson has recently completed her school work experience placement at …
Launch of ‘Beond’ a new project with our partners at the Cerebra Network
We’re delighted to announce the launch of ‘Beond’ a new pioneering study with our …
We’ve been shortlisted for an Award!
We are delighted to announce that we have been shortlisted for the Keele University ‘Breaking …
Transitions Community Chat (online)
Wednesday 14th September at 11 am and 7 pm Do you have a child starting primary school, or perhaps …
Research Study into Medical and Behaviour Management
We want every individual with SMS to have coordinated care! For all our SMS families, care is never …
Affection! Study Participants Needed
It’s something we always say is an endearing quality in SMS, but there is virtually nothing in …
Does your SMSer get the support they need in their education setting?
Please share your EHCP/CSPs with us. We want to draw out provisions and good practice to help every …