The Trustees of the Smith-Magenis Syndrome (SMS) Foundation UK are calling an Extraordinary / Special General Meeting (EGM) for 10:30 am Saturday 16 November, at the Aldingbourne Country Centre in Chichester. The meeting will be followed with an opportunity to join other SMS families at the centre. Booking details are below. The purpose of the …
News & Events
Our 2020 Vision
Every person with Smith-Magenis Syndrome shall have a fulfilling life within a supportive and understanding community. Our mission is that the Smith-Magenis Syndrome (SMS) Foundation UK shall be at the heart of our community of individuals, families, carers and professionals living and working with Smith-Magenis Syndrome and we will be the first point of contact …
Melatonin Application Rejected by SMC
The Scottish Medicines Consortium (SMC) has rejected the application to recommend prolonged-release melatonin (Slenyto®) as a treatment for insomnia in children with autism spectrum disorder and/or Smith-Magenis syndrome (SMS). The decision was based on uncertainty that this medicine would offer value for money to NHS Scotland. The wider implication is that the SMC are saying …
Outline Conference Schedule
We are pleased to publish our outline schedule for the 2019 conference. Further details of the speakers and their presentations will be available leading up to the conference. Outline Schedule at a Glance Friday 15.00 Registration 15.30 – 17.30 Sleep Safely Care Giver Focus Group 19.00 – 20.30 Newbies / Newly Diagnosed Welcome Dinner 19.30 …
Sleep Safely – Your Help Needed!
The SMS UK Foundation has commissioned a project to understand the requirements for sleeping safely and the potential solutions for this to happen. We need the help of our global SMS families. If we could capture the sleep experiences of every SMS family, or as many as possible, then we would have a significant body …
Dates for 2019 Conference Announced
The 2019 SMS Foundation UK Conference Friday 3rd May – Monday 6th May Following the successes of our 2015 and 2017 conferences, we shall be returning to the familiar surroundings of The St John’s Hotel in Solihull. Registration is now open, please visit our conference website for more information and fill in the online registration form …