Smith-Magenis Syndrome (SMS) is a rare genetic condition that occurs one in every 15-25,000 births. People with SMS have complex needs and behaviours, along with a learning disability that can range from mild to profound. It is a lifelong condition that will always need extra support.
What we do
We are The SMS Foundation, a small charity that supports families living with SMS in the UK.
As well as helping families that live with the syndrome we also work with and support a variety of professionals who treat, educate, and care for people with SMS. We help and support families and professionals in a variety of ways, including:
Share your journey and connect with other SMS families
The SMS International map was created by Salli Hunt and is a list of individuals who have been diagnosed with SMS across the world. The map is not affiliated with any of the official SMS organisations and is an independent piece of work that was established to help families find others living near them. Over 950 individuals with SMS across the world are now listed, if you would like to add a person with SMS please click the button below.