SMS Bright Futures 2022 Conference and 30th anniversary celebrations

#smsconf22

Conference sponsored by:

We are the Smith-Magenis Syndrome (SMS) Foundation UK, and we support families who have children and adults with SMS.

Our vision

Every person with Smith-Magenis Syndrome shall have a fulfilling life within a supportive and understanding community.

Our mission and values

Our services and how we help

Provide emotional and practical support – virtually or in-person
Organise, promote, and help towards funding of SMS community get-togethers
Connect families locally through our Regional Parent Supporters (RePS) Programme
Conferences
Small grant scheme to benefit and improve the quality of life of a person with SMS
Provide information through printed and digital literature, and our website hub
Direct any complex questions you have to the professionals
Promote, fund, and collaborate in SMS research projects
Provide information for interested parties about SMS, and raise awareness

About Us

How we help

Never feel isolated or alone. Call our helpline: 0300 101 0034, or Contact us

Please note: This is an answerphone service that will alert us as soon as a message is left. A trustee will call you back as soon as possible – we aim to respond to messages within 24 hours.

What is Smith-Magenis syndrome?

Smith-Magenis syndrome (SMS) is a genetic disability due to a microdeletion or abnormality of chromosome 17. The key symptoms of SMS include:

mild through to profound learning disability
severely disrupted sleep pattern
delayed speech and language skills
distinctive facial features
behaviours that challenge like self-harm, aggression, impulsivity, and hyperactivity

Newly Diagnosed

Learn more about Smith-Magenis syndrome

Latest news

Research Study into Medical and Behaviour Management

July 20, 2022

We want every individual with SMS to have coordinated care! For all our SMS families, care is never about a single visit to a single service. Good care seamlessly moves between services – …

Affection! Study Participants Needed

July 13, 2022

It’s something we always say is an endearing quality in SMS, but there is virtually nothing in research to support what we know. What are the affectionate behaviours exhibited by children and adults …

Does your SMSer get the support they need in their education setting?

June 22, 2022

Please share your EHCP/CSPs with us. We want to draw out provisions and good practice to help every individual with SMS prosper in their education. Our recent survey on education produced some …

Latest family and challenge events

SMS Family Meet-up in Lancashire

Saturday 16th July 2022

View details

Great North Run 2022

Sunday 11th September 2022

View details

London Landmarks Half Marathon 2023

Sunday 2nd April 2023

View details

Caden’s Story

Nine-year-old Caden, based in Clackmannanshire, was facing potential months of limited exercise at the start of the UK lockdown in March.

We speak to his mother, Stacy, on how the wellbeing of the entire family improved thanks to the donation of a tricycle via the Smith-Magenis Syndrome Foundation.

Read Caden’s Story

Ways to support the SMS Foundation

Whether you are running a marathon, organising a fundraising event, or want to become a regular giver we have a selection of ideas and resources to help get you going.