Diagnosis If you are viewing this website as the caregiver of a child or adult newly diagnosed with SMS you may be … READ MORE... about That Defining Moment
SMS Personality
Sunlight and Nightshade
SMS Personality People with SMS are often described as very friendly and outgoing, and as finding social attention … READ MORE... about Sunlight and Nightshade
Sleep Matters
Sweet Dreams and Survival
Sleep Matters Sleep problems are highly characteristic of people with SMS, more so than of other people with an … READ MORE... about Sweet Dreams and Survival
Living with SMS
Bright Stars Shining a Light
Living with SMS Smith-Magenis Syndrome is a complex disability. Each individual will exhibit different aspects of the … READ MORE... about Bright Stars Shining a Light
Dates for 2019 Conference Announced
The 2019 SMS Foundation UK Conference Friday 3rd May – Monday 6th May Following the successes of our 2015 and 2017 conferences, we shall be returning to the … [Read More...] about Dates for 2019 Conference Announced
Team of SMS Dads Complete 3 Peaks Challenge
On 23rd August, a group of 19 Dads that have children with Smith-Magenis syndrome completed the epic '3 Peaks Challenge' to raise money and awareness for SMS. … [Read More...] about Team of SMS Dads Complete 3 Peaks Challenge
Our Vision, Mission and Aims
The SMS Foundation have been busy planning for a sustainable future with a development strategy looking at our vision, aims and goals for the next 1, 3, 5 and … [Read More...] about Our Vision, Mission and Aims
Don’t get cut off
The General Data Protection Regulations, which are a government law, are changing on 25th May 2018 and we have got to make sure that any information that we … [Read More...] about Don’t get cut off
Sponsor My Smile
Sponsor My Smile is a campaign for the SMS Foundation UK. It’s aim is to raise funds and awareness of SMS through a positive social media campaign that allows everyone to celebrate and share our smiles. Individuals with SMS are often known for their big, bright, loving, happy personalities and a smile that is simply infectious!
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About Us
The Foundation was first started as a support group in 1992 by Julie Jowitt, known then as the SMS Contact Group. With the help of Contact-A-Family the group developed from an initial set of 6 families by writing to doctors all over the world who then sent information and referred families on to Julie.