SMS Bright Futures 2022 Conference and 30th anniversary celebrations
#smsconf22
Conference sponsored by:
We are the Smith-Magenis Syndrome (SMS) Foundation UK, and we support families who have children and adults with SMS.
Our vision
Every person with Smith-Magenis Syndrome shall have a fulfilling life within a supportive and understanding community.
Our services and how we help
- Provide emotional and practical support – virtually or in-person
- Organise, promote, and help towards funding of SMS community get-togethers
- Connect families locally through our Regional Parent Supporters (RePS) Programme
- Conferences
- Small grant scheme to benefit and improve the quality of life of a person with SMS
- Provide information through printed and digital literature, and our website hub
- Direct any complex questions you have to the professionals
- Promote, fund, and collaborate in SMS research projects
- Provide information for interested parties about SMS, and raise awareness
Never feel isolated or alone. Call our helpline: 0300 101 0034, or Contact us
Please note: This is an answerphone service that will alert us as soon as a message is left. A trustee will call you back as soon as possible – we aim to respond to messages within 24 hours.
What is Smith-Magenis syndrome?
Smith-Magenis syndrome (SMS) is a genetic disability due to a microdeletion or abnormality of chromosome 17. The key symptoms of SMS include:
- mild through to profound learning disability
- severely disrupted sleep pattern
- delayed speech and language skills
- distinctive facial features
- behaviours that challenge like self-harm, aggression, impulsivity, and hyperactivity
Latest news
A brief summary of The SMS Bright Futures 2022 Conference
Firstly, we’d like to say a huge thank you to everyone who attended our SMS Bright Futures 2022 conference last weekend. It was truly wonderful to see so many new faces, as well as those who …
The Alex Jowitt Award, nominations are now open!
Do you know someone who has made an outstanding contribution to raising awareness for Smith-Magenis syndrome and the SMS Foundation? Nominate a person for the #AlexJowitt award which honours nominees …
Education Survey for Primary Carers in the UK
The SMS Foundation is trying to build an accurate picture of education provision across the UK. We need this information to help us understand some of the issues that families face. This will help us …
Get involved
Local Landmarks 10k
Sunday 20th February 2022
(Past event – now closed)
London Landmarks Half-Marathon 2022
Sunday 3rd April 2022
(Past event – now closed)
Caden’s Story
Nine-year-old Caden, based in Clackmannanshire, was facing potential months of limited exercise at the start of the UK lockdown in March.
We speak to his mother, Stacy, on how the wellbeing of the entire family improved thanks to the donation of a tricycle via the Smith-Magenis Syndrome Foundation.
Ways to support the SMS Foundation
Whether you are running a marathon, organising a fundraising event, or want to become a regular giver we have a selection of ideas and resources to help get you going.
Featured products from our shop
Spotlight on SMS
A series of articles exploring common health symptoms and general wellbeing within Smith-Magenis syndrome.
Introduction to vision in SMS
Through the Keele University Internship Programme, Liam joined the SMS Foundation for the summer to …
Cortical Visual Impairment
What is Cortical Visual Impairment (CVI)? Cortical visual impairment (CVI) is a brain-based visual …
Spotlight on Sleep
Spotlight on Sleep A family’s life can easily turn into a nightmare when one member has a …
Funders and partners
