Supporting Families who have Children and Adults with Smith-Magenis Syndrome
The Smith-Magenis Syndrome Foundation is a small UK registered charity that supports families who have children of all ages with SMS and provides information for professionals working with these families.
What is Smith-Magenis Syndrome?
Smith-Magenis syndrome (SMS) is a genetic disability due to a microdeletion or abnormality of chromosome 17. The key symptoms of SMS include:
- mild to moderate learning disability
- severely disrupted sleep pattern
- delayed speech and language skills
- distinctive facial features
- behaviours that challenge like self-harm, aggression, impulsivity and hyperactivity
Understanding Smith-Magenis Syndrome
That Defining Moment
Diagnosis If you are viewing this website as the caregiver of a child or adult newly diagnosed with SMS you may be experiencing lots of different emotions, some of which…
Sunlight and Nightshade
SMS Personality People with SMS are often described as very friendly and outgoing, and as finding social attention particularly rewarding. Many develop strong social relationships at home, school/college and in…
Sweet Dreams and Survival
Sleep Matters Sleep problems are highly characteristic of people with SMS, more so than of other people with an intellectual disability (where sleep problems are also elevated). There is now…
Bright Stars Shining a Light
Living with SMS Smith-Magenis Syndrome is a complex disability. Each individual will exhibit different aspects of the characteristics and so each family with develop their own ‘coping’ strategies. It is…
On Sale Now
Resuable Face Mask
Elasticated face mask/covering that is washable, branded with the Smith-Magenis Syndrome Foundation logo and name.
£7.50
Become a Member
If you join as a member you will receive updates of any social meetings, conferences and fundraising events that are going on! Joining is quick, easy and free!
How We Help
– Provide information – we have a variety of literature available on the website or in booklet form
– Direct any questions you have to the professionals
– Provide emotional support – on the phone or in person
– Provide information for interested parties about SMS
– Organise and promote social get-togethers
– Small grants can be provided
– Fund research projects
Support My Smile
Individuals with SMS are often known for their big, bright, loving, happy personalities and a smile that is simply infectious! All donations will help the SMS Foundation UK achieve our aim of supporting families living with SMS, so whether it is a ‘fiver for fangs’ a ‘tenner for no teeth’ or a ‘fifty for falsies’ please share your beautiful, cheesy, gappy, gurning smiles and make the World smile along with you!