Connecting Families, Raising Awareness, Building Futures
Help us support a fulfilling future for everyone living with Smith-Magenis syndrome
We want to bring more families together, provide education and awareness training, and sponsor research into SMS. But we can’t do it without your help.
We are the Smith-Magenis Syndrome (SMS) Foundation UK, and we support families who have children and adults with SMS.
Every person with Smith-Magenis Syndrome shall have a fulfilling life within a supportive and understanding community.
Never feel isolated or alone. Call our helpline: 0300 101 0034, or Contact Us
Please note: This is an answerphone service that will alert us as soon as a message is left. A trustee will call you back as soon as possible – we aim to respond to messages within 24 hours.
The SMS Foundation UK has united with a group of eight charities, writing a letter to Dr. Liam Fox and requesting a meeting in response to the proposed Down Syndrome Bill. The charities are also …
Please see below a selection of events and activities taking place over the next week in celebration of the International Smith-Magenis Syndrome Awareness Day on Wednesday 17th November!! We would …
Spotlight on SMS
A series of articles exploring common health symptoms and general wellbeing within Smith-Magenis syndrome.
Through the Keele University Internship Programme, Liam joined the SMS Foundation for the summer to …
What is Cortical Visual Impairment (CVI)? Cortical visual impairment (CVI) is a brain-based visual …
A family’s life can easily turn into a nightmare when one member has a severely disrupted …