Come Together 26–28th June 2026
We’re excited to announce the date for our next SMS Family Residential Weekend, taking place in Liverpool at Barnstondale Activity Centre from Friday 26th to Sunday 28th June 2026.
How the SMS Foundation Can Help You
If you’re a parent or carer looking for support, click here to get the help you need.
If you’re a professional supporting someone with SMS, click here to access guidance.
Latest Articles from the Information and Resources Hub
EHCPs: A Guide for SMS Parents and Carers
Getting the right support for your child with Smith-Magenis syndrome can feel overwhelming — but you don’t have to face it alone. Our free downloadable guide combines legal insight, expert advice, and real-life experiences from families who’ve walked this path. Download your copy today and take the next step with confidence.
Ways to Support Us
Meet our inspiring group of individuals with SMS achieving remarkable things!
Meet the Cobby Family: Their Life with SMS in Ibiza
Since getting a diagnosis the Cobby family have gone above and beyond to raise awareness for SMS and …
A Carer’s Journey with Smith-Magenis Syndrome
As part of Carers Week (10th – 16th June), we share the story of Laurie Grainger and her …
Katherine’s Climb and the Bond of Sisterhood
As we celebrate National Siblings Day, we also shine a spotlight on the extraordinary bond shared …
Share your journey and connect with other SMS families
The SMS International map was created by Salli Hunt and is a list of individuals who have been diagnosed with SMS across the world. The map is not affiliated with any of the official SMS organisations and is an independent piece of work that was established to help families find others living near them. Over 950 individuals with SMS across the world are now listed, if you would like to add a person with SMS please click the button below.
Our Partners and Supporters
