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We are a small charity that supports families living with Smith-Magenis syndrome (SMS)

Never feel isolated or alone. Call our helpline and leave a message: 0300 101 0034 (we aim to respond to messages within 48 hours).

Newly Diagnosed?

CEO Announced for The Smith-Magenis Syndrome (SMS) Foundation UK

January 12, 2020
Nigel Over, CEO Smith-Magenis Syndrome Foundation UK

Nigel Over, CEO Smith-Magenis Syndrome Foundation UKFor over 35 years, Nigel Over has been involved in the running of, or contributing towards numerous charities where he holds a personal interest. His dedication has seen him devote a considerable proportion of his time and effort to the benefit of the widest communities actively contributing to national and local charities including, the British Science Association, ENABLE Scotland, REMAP and, of course, the Smith-Magenis Syndrome (SMS) Foundation UK. So much so, that for almost 20 years Nigel has split his time equally between a career in project management and compliance and the third sector in order that he could commit to charitable endeavours; a change in part instigated from becoming the main carer for his son, Matthew, who has Smith-Magenis syndrome.

Nigel’s passion enthuses others to become involved, irrespective of whether he is championing, leading, contributing or supporting these good causes.

Announcing his appointment as Chief Executive Officer for the Smith-Magenis Syndrome (SMS) Foundation UK, Hazel Wotherspoon, Chair of the Board of Trustees commented

Persuading Nigel to join our Board in 2012 has been one of the best moves we have made in the leadership of the charity. His has been at the heart of the organisation connecting families, raising awareness and building futures for our families. Nigel has led our governance and development strategy review that now sees our evolution into a well-supported, sustainable charity ensuring the long-term benefits for our community.

In 2008 Nigel’s efforts were recognised with the Volunteer of the Year Award predominantly for activities relating to the public understanding and engagement with science. Through chairing committees he has delivered highly accredited festivals of science, events and conferences. A particular highlight was a national award for an inclusive communication conference delivered by university researchers, care health and education professionals, voluntary organisations, people with learning disabilities, and those with communication challenges.

As a campaigner, Nigel has been influential in changes to legislation and practice with a particular focus on education and care. A number of these campaigns, primarily with ENABLE have gone forward to receive many charity awards recognising the significant contributions being made towards equality in society and improving the quality of life for those with disabilities.

Nigel says,

I am absolutely delighted to be given this opportunity to take the Foundation forward working with and for our SMS families and supporters to meet our vision that every person with Smith-Magenis syndrome shall have a fulfilling life within a supportive and understanding community.

Nigel will formally take up the position of Chief Executive Officer upon the completion of our transition to a Charitable Incorporated Organisation. In the meantime he shall continue as a Trustee on the Board devoting time to implementing our strategy and organisational development.

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