The SMS UK Foundation has commissioned a project to understand the requirements for sleeping safely and the potential solutions for this to happen. We need the help of our global SMS families. If we could capture the sleep experiences of every SMS family, or as many as possible, then we would have a significant body …
News & Events
Dates for 2019 Conference Announced
The 2019 SMS Foundation UK Conference Friday 3rd May – Monday 6th May Following the successes of our 2015 and 2017 conferences, we shall be returning to the familiar surroundings of The St John’s Hotel in Solihull. Registration is now open, please visit our conference website for more information and fill in the online registration form …
Team of SMS Dads Complete 3 Peaks Challenge
On 23rd August, a group of 19 Dads that have children with Smith-Magenis syndrome completed the epic ‘3 Peaks Challenge’ to raise money and awareness for SMS. The event involved trekking up the highest mountain in Scotland, England and Wales and is considered one of the ultimate tests of physical endurance, mental stamina and teamwork. …
Our Vision, Mission and Aims
The SMS Foundation have been busy planning for a sustainable future with a development strategy looking at our vision, aims and goals for the next 1, 3, 5 and 10 years ahead. Our Vision Every person with Smith-Magenis Syndrome shall have a fulfilling life within a supportive and understanding community. Mission Statement The Smith-Magenis Syndrome …
Don’t get cut off
The General Data Protection Regulations, which are a government law, are changing on 25th May 2018 and we have got to make sure that any information that we have about you is held correctly so that we can continue being in contact with you. We don’t pass any of your details onto anybody else and …
SMS Foundation 2018 AGM and Members Event
Saturday 5th May 2018 Conkers – Award winning attraction at the heart of the National Forest We are delighted to announce that we will be holding our AGM at Conkers in Derbyshire on Saturday 5th May. Entry to the attraction Conkers is from 10am – 4pm and will be free of charge to adult members …