Lily’s Dream Comes True: A Remarkable Work Experience Journey
At the age of 16, Lily Stevenson has recently completed her school work …
Launch of ‘Beond’ a new project with our partners at the Cerebra Network
We’re delighted to announce the launch of ‘Beond’ a new …
We’ve been shortlisted for an Award!
We are delighted to announce that we have been shortlisted for the Keele …
Transitions Community Chat (online)
Wednesday 14th September at 11 am and 7 pm Do you have a child starting …
Research Study into Medical and Behaviour Management
We want every individual with SMS to have coordinated care! For all our SMS …
Affection! Study Participants Needed
It’s something we always say is an endearing quality in SMS, but there is …
Does your SMSer get the support they need in their education setting?
Please share your EHCP/CSPs with us. We want to draw out provisions and …
Research into Residential Options for Adults with SMS
We kick off our first summer 2022 intern project with Susan Over, who is …
Alex Jowitt Award 2022
The Alex Jowitt Award is to recognise member contributions to raising …
Introducing six new intern placements for 2022
We would like to welcome 6 new interns for the summer of 2022. They will be …
A brief summary of The SMS Bright Futures 2022 Conference
Firstly, we’d like to say a huge thank you to everyone who attended …
The Alex Jowitt Award, nominations are now open!
Do you know someone who has made an outstanding contribution to raising …
Education Survey for Primary Carers in the UK
The SMS Foundation is trying to build an accurate picture of education …
Are you considering adopting a child with Smith-Magenis syndrome?
Western Bay Adoption Service has approached us to help them find a forever …
Caregivers’ experience of sleep management in SMS: research study published on Orphanet Journal of Rare Diseases
We are delighted to announce that the first of two research articles for …
Charities write a letter to Dr. Liam Fox over concerns about Down Syndrome Bill
The SMS Foundation UK has united with a group of eight charities, writing a …
Notification of Annual General Meeting
Notification of Annual General Meeting of the Smith-Magenis Syndrome (SMS) …
Celebrating International SMS Awareness Day
Please see below a selection of events and activities taking place over the …
Newsletter Summer 2021
This is a special edition newsletter reporting on the success of the online …
The SMS Stay Awake Challenge is back!
Join Team SMS on Saturday 19 and Sunday 20 June 2021 to take part in our …
Fulfilling Futures – We need your help
Supporting families for nearly 30 years Since 1992, the SMS Foundation UK …
Teddy Bears’ Picnic Feedback – Survey closes on 16th May
Our Teddy Bears’ Picnic survey ends on Sunday 16th May and we need …
Teddy Bears’ Picnic – schedule for the weekend
You are invited to join us for our Virtual Teddy Bears’ Picnic. We have …
300 picnic boxes make their way to UK SMS members
300 picnic boxes are gradually making their way to all the people with …