The Alex Jowitt Award, nominations are now open!
Do you know someone who has made an outstanding contribution to raising awareness for Smith-Magenis …
Education Survey for Primary Carers in the UK
The SMS Foundation is trying to build an accurate picture of education provision across the UK. We …
Are you considering adopting a child with Smith-Magenis syndrome?
Western Bay Adoption Service has approached us to help them find a forever home for a little girl …
Caregivers’ experience of sleep management in SMS: research study published on Orphanet Journal of Rare Diseases
We are delighted to announce that the first of two research articles for the Safe Sleeping project, …
Charities write a letter to Dr. Liam Fox over concerns about Down Syndrome Bill
The SMS Foundation UK has united with a group of eight charities, writing a letter to Dr. Liam Fox …
Notification of Annual General Meeting
Notification of Annual General Meeting of the Smith-Magenis Syndrome (SMS) Foundation UK CIO …
Celebrating International SMS Awareness Day
Please see below a selection of events and activities taking place over the next week in celebration …
Newsletter Summer 2021
This is a special edition newsletter reporting on the success of the online Teddy Bears’ Picnic, …
The SMS Stay Awake Challenge is back!
Join Team SMS on Saturday 19 and Sunday 20 June 2021 to take part in our SMS Stay Awake …
Fulfilling Futures – We need your help
Supporting families for nearly 30 years Since 1992, the SMS Foundation UK has helped over 300 …
Teddy Bears’ Picnic Feedback – Survey closes on 16th May
Our Teddy Bears’ Picnic survey ends on Sunday 16th May and we need your help! Can you spare …
Teddy Bears’ Picnic – schedule for the weekend
You are invited to join us for our Virtual Teddy Bears’ Picnic. We have lots of activities over the …
300 picnic boxes make their way to UK SMS members
300 picnic boxes are gradually making their way to all the people with Smith-Magenis syndrome on our …
Easter Card and Invitations sent to UK SMS Members
In the lead-up to our next virtual event, the ‘Teddy Bears’ Picnic’ on the 1st and …
This week’s community Zoom drop-in chat with Jayne Dainty of SOS Care Services
This week’s community Zoom drop-in chat is with Jayne Dainty of SOS Care Services. Jayne will …
SMS Foundation UK Conference Cancelled for 2021
At the start of this week the UK Government announcements placed the UK into the highest COVID-19 …
December Newsletter
Connecting Families | Raising Awareness | Building Futures Our December 2020 newsletter is here! …
Natasha Craven Shortlisted for ‘Best Student Contribution’ to a Small to Medium-sized Employer award!
Natasha Craven, who joined the Smith-Magenis Syndrome Foundation UK team in October 2020, has …
Announcement of AGM
Announcement of the General Meeting for: 1186647 The Smith-Magenis Syndrome (SMS) Foundation UK …
Conference 2021 Announcement
A Conference Like No Other Yes, we are still planning to hold an in-person conference on 1st & …
Win a loan of a Safety Sleeper for 2 weeks
As our current Smith-Magenis syndrome facts have been about sleep we are delighted to announce a …
The SMS Foundation introduces Natasha Craven as our Research and Admin Assistant
Natasha Craven joined us at the start of October 2020 on a part-time basis as our …
Nigel Over wins the ‘Terrific Trustee’ category at SCVO Charity Awards 2020
We are thrilled to announce that tonight’s winner of the ‘Terrific Trustee’ …
UK Demographics Study
The aim of this study is to provide a definitive demographic profile of syndrome diagnosis …