• Skip to main content
  • Skip to header right navigation
  • Skip to site footer
  • Home
  • About Us
    • Our Vision, Mission and Values
    • How We Help
    • Our Trustees
    • Our Staff
    • Our Regional Parent Supporters
    • Our Professional Board
    • Newsletters
    • Annual Reports
  • News
    • News
    • SMS Family Events
    • Activities
    • Conferences
    • Research
    • Blog
    • Newsletters
  • Get Involved
    • Fundraising Events
    • Become a Member
    • Ways to Donate
    • Become a Regular Donor
    • Payroll Giving
    • Fundraising Ideas
  • Shop
    • Basket
  • Contact
  • Membership
  • Donate
Smith-Magenis Syndrome Foundation UK logo

Smith-Magenis Syndrome Foundation UK

Connecting Families, Raising Awareness, Building Futures

  • What is SMS?
    • Overview of SMS
    • New Diagnosis
    • A Guide to SMS Booklet
    • SMS Behaviours
    • Sleep in SMS
    • Living with SMS
    • Health
    • Facts about Smith-Magenis syndrome
    • Videos about SMS
    • Frequently asked questions
    • Find Support for SMS
  • Spotlight on SMS health
    • Vision
    • Sleep
  • Find Support for SMS
    • Small Grant Applications
    • Newlife’s Emergency Equipment Loan Service
    • Emergency hospital documents for download
    • Other Support Organisations
    • Scientific Papers
    • SMS Research
  • Our SMS Community
    • SMS Conference 2022
    • Become a Member
    • Regional Parent Supporters
    • Stories from our SMS Community
  • Home
  • About Us
    • Our Vision, Mission and Values
    • How We Help
    • Meet the Trustees
    • Meet the Staff
    • Regional Parent Supporters
    • Our professional board
    • Newsletters
    • Annual Reports
  • SMS Conference 2022
  • News
    • SMS Family Events
    • Activities
    • Conferences
    • Research
    • Blog
  • Get Involved
    • Events
    • Become a Member
    • Ways to Donate
    • Become a Regular Donor
    • Payroll Giving
    • Fundraising Ideas
    • Support My Smile Campaign
  • Shop
    • My Basket
  • What is SMS?
    • Overview of SMS?
    • New Diagnosis
    • SMS Behaviours
    • Living with SMS
    • Sleep and SMS
    • Health
    • Facts about Smith-Magenis syndrome
    • Frequently asked questions
    • Find Support for SMS
  • Spotlight on SMS health
    • Vision
    • Sleep
  • Find Support for SMS
    • Small Grant Applications
    • Newlife’s Emergency Equipment Loan Service
    • Emergency hospital documents for download
    • Other Support Organisations
    • Scientific Papers
    • SMS Research
    • Videos
  • Our SMS Community
    • Become a Member
    • Regional Parent Supporters
    • Stories from our SMS Community
  • Contact

Our 2020 Vision

September 19, 2019
changing charity structure image

Every person with Smith-Magenis Syndrome shall have a fulfilling life within a supportive and understanding community.

Our mission is that the Smith-Magenis Syndrome (SMS) Foundation UK shall be at the heart of our community of individuals, families, carers and professionals living and working with Smith-Magenis Syndrome and we will be the first point of contact for those seeking information and support.

To best fulfil our aims and ambitions we need to change the governance structure of the charity. The trustees are proposing that we convert from an unincorporated association (Registered UK Charity) to a Charitable Incorporated Organisation (CIO).

As an unincorporated association, the trustees are personally liable for what the charity does. We are unable to enter into contracts or control some investments in the name of the charity. Any property has to be held on the charity’s behalf by two or more trustees or a corporate custodian trustee or the charities’ land holding service. Being a Registered Charity restricts us on what we can do.

The CIO structure, in effect, allows charities to enter into contracts as corporate entities with limited liability for the trustees and members. Charities that take up CIO status do not need to register with Companies House or be subject to company law, but are registered with and regulated by the Charity Commission. As a corporate (CIO) entity, the charity would have the legal capacity to do many things in its own name such as: employing paid staff, delivering charitable services under contractual agreements, entering into commercial contracts, owning property, etc. A CIO has greater options for raising funds through trusts and grants than an unincorporated association. A CIO is more attractive for support through Pro Bono networks.

It is our ambition to be able to move to a staffed organisation from early 2020 to be in a better position to support our members and to deliver on our aims and objectives.

This change of governance requires approval by our members. A Special or Extraordinary General Meeting (EGM) is required. Our provisional date for the EGM is the weekend of 16/17 November 2019. Proxy and postal voting options will be available. Full details will be made available approximately 21 days before the EGM.

In preparation for the vote on these matters, the register of members eligible to vote will be frozen as of 30 September 2019. Members eligible to vote are those who have joined or renewed under the requirements of GDPR effective from 25th May 2018. Any persons wishing to join the charity after the 30 September 2019 will be entered as Associate Non-Voting Members.

Share:

Share on Facebook Share on Twitter Share on LinkedIn Share on E-mail
Category: News

Like this article?

Sign-up with your email address below and we’ll keep in touch, sending you our latest news and articles about Smith-Magenis syndrome.

Previous Post: « Graph showing sleep patterns in SMS Melatonin Application Rejected by SMC
Next Post: Smith-Magenis Syndrome Foundation UK – EGM Notice New SMS Logo »

Join our Community

Join as a family member and we can connect you with families living near you. You will also receive updates of any social meetings, conferences, and fundraising events going on! Joining is quick and easy!

Join
View the international map of families diagnosed with SMS

Never feel isolated or alone.
Call our helpline: 0300 101 0034
Other ways to Contact Us

Please note: This is an answerphone service that will alert us as soon as a message is left. A trustee will call you back as soon as possible – we aim to respond to messages within 24 hours.

  • Facebook
  • Twitter
  • LinkedIn
  • Instagram
  • YouTube
  • Mail

The Smith-Magenis Syndrome (SMS) Foundation UK CIO

Connecting Families, Raising Awareness, Building Futures

Sign-up to receive the latest news and information direct to your inbox

Please enter your email address below if you would like us to send you emails with our latest news, articles, and information about SMS.
To join as a full member, please click here.
Your data will be processed in accordance with our privacy notice.

Proud finalist of Keele University Breaking the Mould awards
SCA Terrific trustee award 2020
NUE Best Student contribution

Registered UK Charity (CIO) 1186647   ·  Scottish Charity (SCIO) SC050921    

Copyright © 2021 Smith-Magenis Syndrome (SMS) Foundation UK CIO · Privacy Policy · SMS Disclaimer · Terms and Conditions