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SMS Foundation UK

Supporting SMS families for a positive future

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We are a small charity that supports families living with Smith-Magenis syndrome (SMS)

Never feel isolated or alone. Call our helpline and leave a message: 0300 101 0034 (we aim to respond to messages within 48 hours).

Newly Diagnosed?

Outline 2019 Conference Schedule

April 5, 2019
Prof Chris Oliver presenting at the 2017 SMS Conference

We are pleased to publish our outline schedule for the 2019 conference. Further details of the speakers and their presentations will be available leading up to the conference.

Outline Schedule at a Glance

Friday

15.00 Registration
15.30 – 17.30 Sleep Safely Care Giver Focus Group
19.00 – 20.30 Newbies / Newly Diagnosed Welcome Dinner
19.30 – 22.00 Family Meet and Greet Social

Saturday

09.00 – 10.00 Registration
09.30 – 10.00 Welcome / Conference Navigator for Newbies
10.00 – 11.10 Room Change
Younger Families ↓ School Age ↓ Genetics ↓ Teens/Adults ↓
11.10 – 12.10 Health Development
Therapists – Who and What
Day Times
Prospering in School
Understanding Genetics
Genes and What they tell us
Behaviour
Behaviour Management in teens and adults
12.10 – 13.30 Lunch
13.30 – 14.00
14.00 – 15.00
Plenary Session – Our SMS Family – Dad’s Three Peaks, Run Away
Family Open Space
Professional Open Space – Health, Education, Social & Care Focus Group
15.00 – 15.30 Tea/Coffee & Room Change
15.30 – 16.30 I Want to Communicate
Non-Verbal Communication
Educational Support
Accessing Services & Expectations
Genetics Research
Baylor Research Programme
Health Development
Implications of Puberty
16.30 – 17.30 Behaviour
Early Years Behaviour
Emergency Equipment Loan Genetic Interventions
NIH Research
Adult Health
Health in Rare Syndromes
18.00 – 19.30 Dinner
19.30 – 22.30 Evening Entertainment – Magical Mayhem & Disco

Sunday

08.30 – 09.30 Registration Focus Group: SMS UK Foundation for Professionals
09.00 – 09.25 The SMS Foundation UK Annual General Meeting – Followed by Conference Day Overview
Sleep ↓ Research & Development ↓ Adults ↓
09.30 – 10.30 Sleep Safely
Sleep Security Research Project
Neuropsychiatry
Sensory Behaviours
10.30 – 11.00 Coffee
11.00 – 12.00 Sleep Hygiene
Sleep Hygiene Programmes
Behaviour Management
Vagus Nerve Stimulation
Day Times – Planning
Person Centred Plans and Transition Plans
12.00 – 13.30 Lunch
13.30 – 14.30 Sleep Medications
Medical Approaches to Sleep
Healthcare
Healthcare for all ages
Day Times – Employment/Learning
ENABLE Works / Breaking the Barriers
14.30 – 14.40 Room Change
14.40 – 15.40 Accessing Equipment
Selection, Obstacles, Grants
Medications
Understanding the licensing of CBD Oil for genetic conditions in the UK
16.15 – 17.30 Open Space – It’s Your Foundation / Conference Q&A. Followed by Closing Thanks
18.00 – 19.30 BBQ Dinner
19.30 – 22.30 Evening Entertainment

Monday

Family Chill Time
Relax in our coffee lounge with families and conference delegates before heading home.
A light lunch with be provided.

Download Schedule as PDF

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Please note: This is an answer phone service that will alert us as soon as a message is left. A member of the team will call you back as soon as possible – we aim to respond to messages within 48 hours.

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