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SMS Foundation UK

Supporting SMS families for a positive future

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We are a small charity that supports families living with Smith-Magenis syndrome (SMS)

Never feel isolated or alone. Call our helpline and leave a message: 0300 101 0034 (we aim to respond to messages within 48 hours).

Newly Diagnosed?

Bright Stars Shining a Light – A Video about living with SMS

October 30, 2017

The final film in our series! Bright Stars Shining a Light is a video about living with someone with Smith-Magenis syndrome, and in this film we asked a number of different families the following questions:

  • What do they like to do for fun?
  • Describe your child in three words
  • What is your child’s favourite TV show?

This touching film reveals a small insight into family life with SMS. It’ll make you laugh and bring a tear to your eye in equal measure to see how each family describes the challenges and fun of living with someone with SMS. There is certainly a very repeating theme in the light-hearted choice of “three” words each family uses to describe their child!

Credits

The SMS Foundation would like to thank all those who helped to make these films, in particular the families willing to provide an insight into their experiences of living with SMS, including: Bernie Ogilvie, Lynn Archer and Emma Monks, Anna and Matt Ferreira, Tony and Rachel Stokes, Heather and Jon Gunnell, Dawn and Richard Arnold, Sue Rudderham and Roy Clarke, Diane Erth, Christine and Tim Dudley, and Kelly Heeley.

A huge thank you also to Paige Harwood, Josh Turner and Lianne Archer for asking the questions on this video, awesome job!

Finally, an extra special “Thank You” to Salli Hunt for coordinating the films (as well as featuring in them) and the super talented videographer Stephen Crawford.

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Category: Blog
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Never feel isolated or alone. Call our helpline: 0300 101 0034

Please note: This is an answer phone service that will alert us as soon as a message is left. A member of the team will call you back as soon as possible – we aim to respond to messages within 48 hours.

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