In the lead up to the international SMS awareness day (17th November), each week during October, the SMS Foundation UK are releasing a short film about living with Smith-Magenis syndrome.
The next short film in our series is titled ‘That Defining Moment’ and broadly focuses on the diagnosis and early planning aspects of Smith-Magenis syndrome. This film shows a number of different families that have children, adults or siblings with SMS answering the following questions:
- What age is the person you care for with SMS?
- What age were they diagnosed and what was the indicator?
- What education setting or living setting does your SMS child/adult have?
Through these films we share the challenges, achievements, humour and honesty of what life is like for people living with a family member that has Smith-Magenis syndrome.
The SMS Foundation would like to thank all those who helped to make these films, in particular the families willing to provide an insight into their experiences of living with SMS, including: Bernie Ogilvie, Lynn Archer and Emma Monks, Anna and Matt Ferreira, Tony and Rachel Stokes, Heather and John Gunnell, Dawn and Richard Arnold, Sue Rudderham and Roy Clarke, Diane Erth, Christine and Tim Dudley, and Kelly Heeley.
Finally, an extra special “Thank You” to Salli Hunt who coordinated the films (as well as featuring in them) and the super talented videographer Stephen Crawford. You have all done an amazing job!