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We are a small charity that supports families living with Smith-Magenis syndrome (SMS)

Never feel isolated or alone. Call our helpline and leave a message: 0300 101 0034 (we aim to respond to messages within 48 hours).

Newly Diagnosed?

The Smith-Magenis Syndrome (SMS) Foundation UK introduces Helen Hargrave as our Fundraising Manager

March 14, 2020
Helen Hargrave - Fundraising Manager
Helen Hargrave - Fundraising Manager

Having worked in the charity sector since 2010, Helen has spent the past five years in senior management fundraising positions for a variety of charitable causes, incorporating small local charities including Richard House Children’s Hospice through to national organisations including Maggie’s, Shelter and Diabetes UK. Within the third sector, Helen has worked across a number of causes all with vulnerable people at their core, and helping vulnerable people is of massive importance to her. Helen specialises in fundraising and service delivery and is experienced in establishing fundraising programmes across a number of income streams, with a particular focus on corporate, trusts and major donor fundraising. Her experience as a senior fundraiser has enabled her to hone her skills in building a compelling story and understanding donor motivations.

Helen is delighted to be joining the SMS Foundation, where she hopes to develop and grow a robust fundraising programme to ensure the continued delivery of the charity’s vital services.

Nigel Over, CEO (Designate) says:

I am delighted to welcome Helen to the senior management team. Helen is a supportive and passionate fundraiser who will bring valuable and wide-ranging experience to the foundation as we enter this exciting time in our development.

Helen is a parent to Jacob, who is 1.  She joins the Smith-Magenis Syndrome Foundation from her role as Director of Victim Services at Brake, the road safety charity, where she led the victim services team in the funding and delivery of the organisation’s national freephone telephone helpline, the police liaison programme, and their project Sudden, which supports bereavement professionals and anyone bereaved by a sudden death.

Helen joins us in post from 1 April 2020.

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Registered UK Charity (CIO) 1186647 - Registered Scottish Charity (SCIO) SC050921

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