Our Spring 2020 Newsletter

Connecting Families | Raising Awareness | Building Futures

Welcome to our Spring 2020 newsletter providing you with the latest information from the Smith-Magenis Syndrome Foundation UK, this edition includes the following:

• The future of our Foundation – Our vision and mission
• Meet your senior management team
• The Trustees
• Our information and support service, plans for the future
• Coronavirus – our emergency planning pack
• Charity ambassador – Ciara Harvie
• Getting medicines approved – Slenyto 
• Your fundraising events
• Future events