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SMS Foundation UK

Supporting SMS families for a positive future

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We are a small charity that supports families living with Smith-Magenis syndrome (SMS)

Never feel isolated or alone. Call our helpline and leave a message: 0300 101 0034 (we aim to respond to messages within 48 hours).

Newly Diagnosed?

Emergency hospital documents for download

March 24, 2020
Example of emergency alert card

Going into hospital is never an easy time for anyone, but for someone with a learning disability and complex needs, it can be extremely stressful.

As the Covid-19 pandemic continues to grow it is important that we try and formulate some sort of plan should our loved-one with Smith-Magenis syndrome face staying in the hospital.

With this in mind, we have prepared three documents for you to download to help explain SMS to the medical personnel and provide specific key information about the person being treated.

SMS Key Characteristics Factsheet

This document is a generic ‘at-a-glance’ factsheet summarising the key characteristics of the syndrome. The document is a single sheet which can be printed and includes a QR code linking directly to our website for further information about the syndrome.

Download Factsheet (PDF)

SMS Hospital Passport

This document provides a framework for medical information that is specific to the person with SMS. Print out and fill in the fields.

Editable (Microsoft Word) version

Download Hospital Passport (Word)

Print version (PDF) and fill in by hand

Download Hospital Passport (PDF)

SMS Alert Card

The alert card is a document the size of a credit card that carries the basic details of the person with SMS and designed to fit inside a wallet and used in the case of an emergency. The alert card can either be edited in Word, or filled in by hand. The card also includes a QR code linking to our website for further information, and the contact details of Hazel Wotherspoon (Chairperson) and Nigel Over (CEO).

Editable (Microsoft Word) version

Download SMS Alert Card (Word)

Print version (PDF) and fill in by hand

Download SMS Alert Card (PDF)

If you have any trouble filling in either the passport or alert card please do not hesitate to contact the Foundation and we will help you, info@smith-magenis.co.uk.

Other Medical Resources

NHS Hospital Passport

Should you need a more detailed hospital passport, there is one available from the NHS website.

Download Generic Hospital Passport (Word)

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Never feel isolated or alone. Call our helpline: 0300 101 0034

Please note: This is an answer phone service that will alert us as soon as a message is left. A member of the team will call you back as soon as possible – we aim to respond to messages within 48 hours.

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