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SMS Foundation UK

Supporting SMS families for a positive future

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We are a small charity that supports families living with Smith-Magenis syndrome (SMS)

Never feel isolated or alone. Call our helpline and leave a message: 0300 101 0034 (we aim to respond to messages within 48 hours).

Newly Diagnosed?

Notification of Annual General Meeting

January 5, 2022

Notification of Annual General Meeting of the Smith-Magenis Syndrome (SMS) Foundation UK CIO (1186647 &SC050921)

The Trustees, as the voting members of the charity, shall meet via Zoom on Tuesday 25 January 2022 at 7pm for the charity’s AGM.

Interested individuals, general members of the SMS Foundation, supporters, etc., are welcome to attend and contribute as observers. Please contact us for the Zoom link to the AGM.

Board Member Nominations

Expressions of interest in joining the Board are invited with particular emphasis towards strategic and leadership skills in one or more of the following areas:

  • Financial management / treasurer
  • Multi-stream fundraising strategies
  • Organisational strategy development
  • Marketing, media communications and public relations
  • Campaigning
  • Education leadership

Please email your interest to info@smith-magenis.co.uk

Independent External Examiner of the Accounts

Are you a suitably qualified accountant willing to undertake the independent scrutiny of our accounts?

Our financial year ends on 30 June and we are looking for one or more individuals who could examine our accounts for us depending on their prevailing work commitments. As a recently reconstituted Charitable Incorporated Organisation, we are keen to file our accounts with the regulators quickly and well in advance on the nine-month OSCR deadline. This is to establish our visible financial history. Ideally, we would be seeking approval of the accounts for filing at our September board meeting. Our previous annual reports can be found at https://smith-magenis.org/annual-reports/. Please contact Nigel Over, via nigel@smith-magenis.co.uk with your interest in taking on this responsibility.

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Never feel isolated or alone. Call our helpline: 0300 101 0034

Please note: This is an answer phone service that will alert us as soon as a message is left. A member of the team will call you back as soon as possible – we aim to respond to messages within 48 hours.

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Registered UK Charity (CIO) 1186647

Scottish Charity (SCIO) SC050921

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