Please see below a selection of events and activities taking place over the next week in celebration of the International Smith-Magenis Syndrome Awareness Day on Wednesday 17th November!!
We would also like to take this opportunity to thank everyone who has supported The SMS Foundation UK over the past year, please see our video message from CEO Nigel Over.
Celebrate and connect with the SMS Community
Join us and raise a glass on 17th November at 9 pm to celebrate the International Smith-Magenis Syndrome Awareness Day. We’re also excited to announce that the wonderful Ann Smith will also be joining us for this virtual event.
Details for this event and the zoom link can be found here: https://fb.me/e/2DxmKV
Ciara Harvie – Concert for The Smith-Magenis Syndrome Foundation UK
We are excited to announce that Ciara Harvie will be performing LIVE on her Facebook page this Sunday 14th November at 7 pm to raise funds for us.
Ciara’s voice is magical, to listen to her sing please head over to her Facebook page Ciara Harvie – Music on Sunday to watch her live concert!
If you would like to support Ciara’s concert you can donate online on her JustGiving page or by text: SMSCIARA to 70560 to donate £5 (or choose the amount you want to donate).
Sponsored Game-athon
On Saturday 13th and Sunday 14th November we have a Sponsored Game-athon to raise funds for The Smith-Magenis Syndrome Foundation UK.
Alan, Ethan, Michael, and Kieran will be flat-out gaming for 28.52 hours, which conveniently translates to 1711 minutes in recognition of our International SMS Awareness Day next week.
Tune in to watch their sponsored game-athon on their Twitch channel, or if you don’t fancy staying up for 28.52 hours you can sponsor them on their JustGiving page, or text SMSGAME to 70470 to donate £5 (or choose the amount you want to donate).
Alan, Ethan, Michael and Kieran – we hope you have a plentiful supply of coffee on hand!
Raising Awareness for Smith-Magenis syndrome
Over the last few days, you may have noticed we have ramped up our efforts to raise awareness for Smith-Magenis syndrome. One way we do this is by publishing our SMS Fact videos to our social media channels every day of the month throughout November.
If you aren’t connected on any of our social media channels you may have missed these. However, you can view the entire series of videos on our website.
SMS Awareness Assembly
To help raise funds and awareness, William and Teddy Stevenson will be sharing their experiences of living with a sister who has SMS and talking about the syndrome. Along with their mum, Leeann Stevenson, they are holding an SMS Awareness Assembly and cake sale on Wednesday 17th November at their primary school St Katharine’s in Wiltshire.
If you would like to help raise awareness of Smith-Magenis syndrome, or if your children would like to organise an awareness assembly, please get in touch with Leeann our Information and Communications manager for resources.
Finally, we have also seen some wonderful awareness initiatives from many members of our own community. If you would like us to help spread the word of an event or activity you would like to promote, or if you need any resources please feel free to contact us for support.
Newsletter Summer 2021