Western Bay Adoption Service has approached us to help them find a forever home for a little girl with Smith-Magenis syndrome. They are looking for a two-parent family, or a one-parent family with a close and active support network. Details about this very special little girl can be found below or downloaded here.
Adoption Profile
I was born in 2019 and was recently diagnosed with Smith-Magenis Syndrome (SMS). I need a family who understands my needs, will celebrate my successes, advocate on my behalf and who can offer me time patience and love.
I’ve been described as a very special and rewarding child to care for. I really love swimming and kicking my legs in the bath. I love sensory toys with buttons, noises and bright colours – and cuddles.
I also enjoy being outside, going to the park, having a drive in the car and going on long walks in my pram. At home I like songs and nursery rhymes, my soft ball pit and watching Blue’s Clues. I am learning new skills all the time. I can now crawl, stand and cruise the furniture and walk with a walking frame. My vision is impaired but I am very aware of my surroundings and can follow bright lights, colours and shadows around the room or on the TV.
Oh and I REALLY love the colour blue.
I enjoy my specialist playgroup, going out and about with my carers and lots of playtime at home, which really encourages my sociability and my development. I can babble, screech and blow raspberries to make myself understood. I’m also learning sign language. I am likely to need specialist school provision in the future.
My foster carers say, “It is so rewarding seeing her coming on, and the determination and appetite she has for learning new skills. Her adoptive family will need to be prepared for a lot of uncertainties around her future development and to give her lots and lots of time. In return, she will make the most of their love, support and patience to develop her abilities – and, of course, give them so much love back.”
I thrive on being given time, love and attention. Equally, I love to watch other children and there is a baby in my foster placement, so I’m open to a family with or without other children. It might be nice to have a sibling!?
Due to my unique needs I am looking for a two-parent family or one parent with a close and active supportive support network. If you would like to know more about me or think you could be the family I’m looking for; please get in touch, I would love to hear from you.
Contact: Melanie Oates
0300 365 22 22
Caregivers’ experience of sleep management in SMS: research study published on Orphanet Journal of Rare Diseases
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