Organise a SMS get-together
We provide up to £200 to assist members in organising social events and get-togethers so that they can connect with other families and share experiences.
If you would like to apply for a social event grant, please fill in our social event application form (Word Document) below and email it to email@example.com and a trustee will come back to you as soon as possible.
Never feel isolated or alone
Call our helpline: 0300 101 0034
Please note: This is an answerphone service that will alert us as soon as a message is left. A trustee will call you back as soon as possible – we aim to respond to messages within 24 hours.
Join our social media groups
A variety of private groups have been set up on Facebook and WhatsApp where families can share experiences and ask questions. Separate groups have been created for different people and/or needs including mums, dads, siblings, health issues, and a number of groups for carers by age range.
If you would like to join any of these groups please complete the form below and your request will be passed on to a group administrator. We will need your name and email address so that we can reply to your request. WhatsApp requests will need your mobile number, and Facebook requests require your Facebook ID/name.
So that we can direct you to the most appropriate group(s) we will also need to know how you are involved with Smith-Magenis syndrome.
Stories from the SMS community
Do you have a story you would like to share?
Do you have an inspirational story? Are you campaigning, or do you want to raise awareness about an issue you are facing? We love to hear from our community. If you have an experience you can share, please get in touch and we will help tell your story.