On 23rd August, a group of 19 Dads that have children with Smith-Magenis syndrome completed the epic ‘3 Peaks Challenge’ to raise money and awareness for SMS. The event involved trekking up the highest mountain in Scotland, England and Wales and is considered one of the ultimate tests of physical endurance, mental stamina and teamwork. […]
News
Our Vision, Mission and Aims
The SMS Foundation have been busy planning for a sustainable future with a development strategy looking at our vision, aims and goals for the next 1, 3, 5 and 10 years ahead. Our Vision Every person with Smith-Magenis Syndrome shall have a fulfilling life within a supportive and understanding community. Mission Statement The Smith-Magenis Syndrome […]
Don’t get cut off
The General Data Protection Regulations, which are a government law, are changing on 25th May 2018 and we have got to make sure that any information that we have about you is held correctly so that we can continue being in contact with you. We don’t pass any of your details onto anybody else and […]
SMS Foundation 2018 AGM and Members Event
Saturday 5th May 2018 Conkers – Award winning attraction at the heart of the National Forest We are delighted to announce that we will be holding our AGM at Conkers in Derbyshire on Saturday 5th May. Entry to the attraction Conkers is from 10am – 4pm and will be free of charge to adult members […]
World SMS Awareness Day and our 25th Anniversary
It’s World Smith-Magenis Syndrome Awareness Day, and the SMS Foundation UK are also celebrating our 25th anniversary – DOUBLE CELEBRATION! Across the UK the SMS Foundation have been encouraging and helping to fund parties so that families can connect, share stories and celebrate life living with SMS. A number of events have been organised by […]
Bright Stars Shining a Light – A Video about living with SMS
Week 5, and last but by no means least, the final film in our series! Bright Stars Shining a Light is a video about living with someone with Smith-Magenis syndrome, and in this film we asked a number of different families the following questions: What do they like to do for fun? Describe your child […]
