Blog

Disability History Month offers a valuable opportunity to celebrate the stories of individuals, families, and organisations dedicated to supporting those living with disabilities. As our International …

Earlier this week, we posted a brief survey on our Facebook page, posing the question, “What age was your child/adult when they received their diagnosis of Smith-Magenis syndrome (SMS)?” …

Introducing a Fresh Look for 2023 We are thrilled to unveil our rebranded identity, marking a significant milestone in our journey to better serve our SMS community. Our last brand update in 2017 …

At the heart of our small charity is a big vision we are working tirelessly on to support families living with SMS. As we embark on the next chapter of our journey, we are excited to introduce our …

On 23rd March 2020, Boris Johnson told the country that people ‘must’ stay at home and certain businesses must close. The impact of this was felt in every corner of society as life …

Maintaining wellbeing – both mental and physical – is incredibly important for children and adults with Smith-Magenis Syndrome, as well as their families around them. Here, we’ve highlighted five top …

The final film in our series! Bright Stars Shining a Light is a video about living with someone with Smith-Magenis syndrome, and in this film we asked a number of different families the following …

Sunlight & Nightshade is a video about some of the behaviours associated with Smith-Magenis syndrome, and in this film we ask a number of different families the following questions: Can you tell …

We are delighted to release the third film in our series. Sweet Dreams & Survival is a video about the sleep difficulties associated with Smith-Magenis syndrome, and in this film we ask a number …

In the lead up to the international SMS awareness day (17th November), each week during October, the SMS Foundation UK are releasing a short film about living with Smith-Magenis syndrome. The …