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On 23rd March 2020, Boris Johnson told the country that people ‘must’ stay at home and certain businesses must close. The impact of this was felt in every corner of society as life ‘as-we-knew-it’ came to an abrupt pause and social interaction with anyone living outside our home was denied. People who were considered ‘clinically …

Maintaining wellbeing – both mental and physical – is incredibly important for children and adults with Smith-Magenis Syndrome, as well as their families around them. Here, we’ve highlighted five top tips to maintain wellbeing and we speak to one family who’ve been able to make the most of exercising while in lockdown. Eating well Keeping …

The final film in our series! Bright Stars Shining a Light is a video about living with someone with Smith-Magenis syndrome, and in this film we asked a number of different families the following questions: What do they like to do for fun? Describe your child in three words What is your child’s favourite TV …

Sunlight & Nightshade is a video about some of the behaviours associated with Smith-Magenis syndrome, and in this film we ask a number of different families the following questions: Can you tell me the best two things about living with or caring for someone with SMS? Can you tell me the two most challenging things …

We are delighted to release the third film in our series. Sweet Dreams & Survival is a video about the sleep difficulties associated with Smith-Magenis syndrome, and in this film we ask a number of different families the following questions: Describe their bedroom or night time routine Do you receive much support for respite in …

In the lead up to the international SMS awareness day (17th November), each week during October, the SMS Foundation UK are releasing a short film about living with Smith-Magenis syndrome. The next short film in our series is titled ‘That Defining Moment’ and broadly focuses on the diagnosis and early planning aspects of Smith-Magenis syndrome. This …