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SMS Foundation UK

Supporting SMS families for a positive future

We are a small charity that supports families living with Smith-Magenis syndrome (SMS)

Never feel isolated or alone. Call our helpline and leave a message: 0300 101 0034 (we aim to respond to messages within 48 hours).

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Information & Resources

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Find guidance, practical tools, and reliable information to help you better understand and support someone with SMS. This section brings together advice for families, carers, and professionals, covering key topics from health and behaviour to education and daily life.