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SMS Foundation UK

Supporting SMS families for a positive future

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We are a small charity that supports families living with Smith-Magenis syndrome (SMS)

Never feel isolated or alone. Call our helpline and leave a message: 0300 101 0034 (we aim to respond to messages within 48 hours).

Newly Diagnosed?

Facts about SMS

A series of factual videos from parents, carers, and professionals who live and work with people that have Smith-Magenis syndrome.

When was Smith-Magenis syndrome discovered, and who first described the characteristics?

What are the other names people use to describe Smith-Magenis syndrome?

How is Smith-Magenis syndrome caused, and does it usually run in families?

What are the risks of a sibling having Smith-Magenis Syndrome?

What features are often characterized in Smith-Magenis syndrome?

What do the common features of Smith-Magenis syndrome include?

Other features commonly described in Smith-Magenis syndrome.

What behaviours are typical in Smith-Magenis syndrome?

How many people are known to have Smith-Magenis syndrome?

Do people with Smith-Magenis syndrome have a normal life expectancy?

Can medication improve the quality of life of a person with Smith-Magenis syndrome?

Is there a cure for Smith-Magenis syndrome?

What are the positive aspects of Smith-Magenis syndrome?

How is sleep affected for a person with Smith-Magenis syndrome?

What are the common effects caused by poor sleep in Smith-Magenis syndrome?

What common facial features do people with Smith-Magenis syndrome share?

Why are people with Smith-Magenis syndrome so lovable and affectionate?

Do facial characteristics change as a person gets older with Smith-Magenis syndrome?

What is hypotonia and do people with Smith-Magenis syndrome commonly suffer from it?

What are other signs and symptoms of Smith-Magenis syndrome?

Is hearing loss a common symptom of Smith-Magenis syndrome?

Do people with Smith-Magenis syndrome commonly suffer from problems with their eyesight?

Are heart and kidney defects common for people with Smith-Magenis syndrome?

How we can help people with Smith-Magenis syndrome and delayed speech!

Do infants with Smith-Magenis syndrome commonly struggle with feeding?

Why it might be difficult to tell if a person with Smith-Magenis syndrome is feeling unwell.

Are people with Smith-Magenis syndrome usually friendly and outgoing?

What can people with Smith-Magenis syndrome expect to accomplish in life?

What is a meltdown and what can trigger it in people with Smith-Magenis syndrome?

Do people with Smith-Magenis syndrome typically have a learning disability?

How many people are diagnosed with Smith-Magenis syndrome in the world?

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Never feel isolated or alone. Call our helpline: 0300 101 0034

Please note: This is an answer phone service that will alert us as soon as a message is left. A member of the team will call you back as soon as possible – we aim to respond to messages within 48 hours.

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Registered UK Charity (CIO) 1186647

Scottish Charity (SCIO) SC050921

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