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SMS Foundation UK

Supporting SMS families for a positive future

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We are a small charity that supports families living with Smith-Magenis syndrome (SMS)

Never feel isolated or alone. Call our helpline and leave a message: 0300 101 0034 (we aim to respond to messages within 48 hours).

Newly Diagnosed?

Becoming a DWP Appointee

Topic: Benefits

Some young people with SMS are not able to manage money or apply for benefits by themselves. When this happens, a parent or carer can be authorised to act for them. This is called being a DWP appointee.

A DWP appointee is legally recognised by the Department for Work and Pensions (DWP) to handle benefit claims and payments on behalf of someone who cannot do this independently. It ensures that a disabled young person still receives the financial support they are entitled to.

When is a DWP Appointee Needed?

An appointee may be needed if a young person cannot safely or independently:

  • understand benefit applications or assessments
  • manage money or bank accounts
  • communicate their support needs
  • make decisions that affect their welfare
  • respond to official letters or report changes

This is common for many young people with SMS, particularly when there are learning disabilities, communication difficulties, impulsive behaviours, or safeguarding needs.

A DWP appointee can be useful at any age, but it is especially important at 16–18, when young people may start receiving Personal Independence Payment (PIP) or Universal Credit (UC) in their own name.

What Does an Appointee Do?

A parent or carer who becomes an appointee takes on the responsibility to:

  • apply for benefits on behalf of the young person
  • provide evidence for assessments
  • receive letters and communicate with DWP
  • report changes in circumstances
  • manage benefit payments for the young person’s needs

Benefit payments still belong to the young person, but the appointee manages them for their benefit.

How Do You Become a DWP Appointee?

You can request appointeeship by contacting the DWP. They will usually:

  1. arrange a phone or in-person appointment
  2. check whether the young person can manage their own claim
  3. confirm approval in writing

If you are already an appointee for PIP, you typically only need to confirm your role again when applying for Universal Credit. The process is usually quicker with existing evidence.

Summary

A DWP appointee allows a parent or carer to take control of benefit claims for a young person who cannot safely manage them. This protects their financial rights and ensures they receive the support they need, particularly when moving to PIP or UC at 16–18.

For extra support with your application, you can download our Statement on Smith-Magenis Syndrome, which gives a clear overview of the condition and its key characteristics. Families often attach this document to their DWP forms to help the assessor understand SMS and why additional care and supervision are needed.

Download Statement
Print Friendly Statement
Cover image for statement of SMS document
Topic: Benefits
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Never feel isolated or alone. Call our helpline: 0300 101 0034

Please note: This is an answer phone service that will alert us as soon as a message is left. A member of the team will call you back as soon as possible – we aim to respond to messages within 48 hours.

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