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SMS Foundation UK

Supporting SMS families for a positive future

  • What is SMS?
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We are a small charity that supports families living with Smith-Magenis syndrome (SMS)

Never feel isolated or alone. Call our helpline and leave a message: 0300 101 0034 (we aim to respond to messages within 48 hours).

Newly Diagnosed?

Support in a Crisis

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Statement Describing SMS for Assessments and Forms

How this statement can be used: parents and carers may include this statement in applications for DWP benefits (such as PIP), EHCP processes, social care assessments, housing or adaptations requests, …

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CAMHS: Where to Start, Who to Ask, What to Expect

Support for Your Child, Clarity for You What is CAMHS? Children and young people with Smith-Magenis Syndrome (SMS) often have complex needs that may include challenges with regulating their emotions, …

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Support For Families Reaching Crisis Point

Families of children with Special Educational Needs (SEN) may at times reach a crisis point, where behaviours and challenges feel overwhelming and difficult to manage safely at home, in school, or in …

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Never feel isolated or alone. Call our helpline: 0300 101 0034

Please note: This is an answer phone service that will alert us as soon as a message is left. A member of the team will call you back as soon as possible – we aim to respond to messages within 48 hours.

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Become a Member of The SMS Foundation UK

Connect with SMS families in your region and be the first to receive updates on any social meetings, conferences, and fundraising events going on!

Family & Carer Membership
Professional Membership

Registered UK Charity (CIO) 1186647

Scottish Charity (SCIO) SC050921

Registered with the Fundraising Regulator

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