Living with SMS
Personal stories from individuals sharing their experiences of life with Smith-Magenis syndrome.
Ellen Wotherspoon and her remarkable sporting journey
At the SMS Foundation UK, we take immense pride in celebrating individuals who are dedicated to pursuing their aspirations. Ellen Wotherspoon, a 28-year-old from Scotland, has become a shining example …
Louie Martland: Thriving in the World of Hospitality
Meet Louie Martland, a remarkable 17-year-old from Wigan, Greater Manchester, who has shown incredible determination and resilience in pursuing his passion for customer service and hospitality. Louie, …
Elizabeth’s Inspiring Journey: Marching with Confidence on Armed Forces Day
At just 16 years old, Elizabeth Dudley from Belton in South Yorkshire has proven that determination and an inclusive environment can turn aspirations into reality. This year, she had the opportunity …
Lily’s Dream Comes True: A Remarkable Work Experience Journey
At the age of 16, Lily Stevenson has recently completed her school work experience placement at Bliss Hairdressers in Devizes, Wiltshire. This opportunity not only allowed Lily to explore her passion …
Facts about SMS
A series of factual videos from parents, carers, and professionals who live and work with people that have Smith-Magenis syndrome. When was Smith-Magenis syndrome discovered, and who first described …
Videos About SMS
Sharing My Syndrome ‘Sharing My Syndrome’ is a video filmed during our 2017 SMS conference. That Defining Moment Broadly focusing on the diagnosis and early planning aspects of Smith-Magenis syndrome, …
Everyday care and living with SMS
Living with SMS, finding support and building futures.
Frequently asked questions
If we have one child with SMS, will our other children also have SMS? Smith-Magenis syndrome is typically not inherited. It usually results from a genetic change that occurs during the formation of …