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SMS Foundation UK

Supporting SMS families for a positive future

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We are a small charity that supports families living with Smith-Magenis syndrome (SMS)

Never feel isolated or alone. Call our helpline and leave a message: 0300 101 0034 (we aim to respond to messages within 48 hours).

Newly Diagnosed?

Get Support & Advice

Get advice, specialised support, or just find someone to talk to.

Support for Parents & Carers

Get professional support including advice, guidance, or training.

Support for Professionals

Help & Practical Advice

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How the Access Card can Help People With SMS

Tagged With: Benefits, Supporting Organisations
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Becoming a DWP Appointee

Tagged With: Benefits
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Turning 18 with SMS: PIP and Universal Credit

Tagged With: Benefits, Transition Planning
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Applying for DLA for a Child with SMS

Tagged With: Benefits
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Statement Describing SMS for Assessments and Forms

Tagged With: Benefits, EHCPs, Support in a Crisis
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Understanding the Move from DLA to PIP

Tagged With: Benefits
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Support For Families Reaching Crisis Point

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Newlife’s Emergency Equipment Loan Service

Tagged With: Supporting Organisations
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Other Support Organisations

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Health & Medical Advice

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CAMHS: Where to Start, Who to Ask, What to Expect

Tagged With: General Health, Support in a Crisis, Supporting Organisations
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General Health Advice and Guidance

Tagged With: General Health
Webinar - featured image

Understanding Cerebral Visual Impairment (Webinar Recording)

Tagged With: Vision
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Cortical or Cerebral Visual Impairment

Tagged With: Vision
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Seizures and SMS

Tagged With: General Health
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Myopia

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Introduction to vision in SMS

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Strabismus

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Cataracts

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Nystagmus

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Detached Retina

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Education Articles

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Delivery of EHCP Provision for Children with SMS

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Making the EHCP Work for a Child With SMS

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Why the Right Outcomes Unlock Potential for Children with SEN 

Tagged With: Transition Planning
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A Guide to EHCP Transitions and Legal Deadlines

Tagged With: EHCPs, Transition Planning
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School Transition Planning for Children with SMS

Tagged With: EHCPs, Transition Planning
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EHCPs: A Guide for SMS Parents and Carers

Tagged With: EHCPs
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A Guide to the EHCP Process (Webinar Recording)

Tagged With: EHCPs
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Webinar: Navigating the Annual Review (PAST EVENT)

Tagged With: EHCPs
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Never feel isolated or alone. Call our helpline: 0300 101 0034

Please note: This is an answer phone service that will alert us as soon as a message is left. A member of the team will call you back as soon as possible – we aim to respond to messages within 48 hours.

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Become a Member of The SMS Foundation UK

Connect with SMS families in your region and be the first to receive updates on any social meetings, conferences, and fundraising events going on!

Family & Carer Membership
Professional Membership

Registered UK Charity (CIO) 1186647

Scottish Charity (SCIO) SC050921

Registered with the Fundraising Regulator

Copyright © 2021 Smith-Magenis Syndrome (SMS) Foundation UK CIO · Registered Charity Address: 61 High Street, Pewsey, Wiltshire SN9 5AF  
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