Further reading on Smith-Magnenis syndrome and living with disability can be found on some of these websites.
Other SMS Organisations
PRISMS (Parents & Researchers Interested in Smith-Magenis Syndrome)
PRISMS is dedicated to providing information and support to families of persons with Smith-Magenis Syndrome (SMS), sponsoring research and fostering partnerships with professionals to increase awareness and understanding of SMS.
SMS Research Foundation
The Smith-Magenis Research Foundation is dedicated to improving the lives of children born every day with SMS. We fund only the best, most comprehensive SMS research projects along with the best and brightest scientists focused in this area.
Association Smith-Magenis (France)
The aim of the Association SMITH MAGENIS 17 France is to make the syndrome known both to health and education professionals and to the general public.
Research & Genetic Websites
FIND (Further Inform Neurogenetic Disorders
We are the Centre for Neurodevelopmental Disorders and are located in the School of Psychology at the University of Birmingham and are funded by Cerebra with additional support from a number of agencies and charities.
Genetic Disorders UK is a registered charity with a vision to improve the lives of individuals and families affected by genetic disorders.
Jeans for Genes
We help disorder-specific charities and patient groups to deliver inspiring projects and support services for children affected by a genetic disorder in the UK.
A charity dedicated to helping families with children with brain conditions discover a better life together.
The National Library of Medicine, Genetics Home
The National Library of Medicine (NLM), on the campus of the National Institutes of Health in Bethesda, Maryland, has been a center of information innovation since its founding in 1836. The world’s largest biomedical library, NLM maintains and makes available a vast print collection and produces electronic information resources on a wide range of topics that are searched billions of times each year by millions of people around the globe. It also supports and conducts research, development, and training in biomedical informatics and health information technology.
Behaviour and Learning
BILD (British Institute of Learning Difficulties)
Our vision is a society where people with disabilities are equal citizens, able to enjoy the same rights and opportunities as everyone else. Our mission is to enable excellent support, champion the rights, and improve the quality of life of people with disabilities.
The Challenging Behaviour Foundation
We are the charity for people with severe learning disabilities whose behaviour challenges. Our vision is for anyone with severe learning disabilities who displays challenging behaviour to have the same life opportunities as everyone else. We work to improve understanding of challenging behaviour, empower families with information and support, and help others to provide better services and more opportunities.
Our vision is a world where people with a learning disability are valued equally, listened to and included.
Family & Carers Support
The UK’s only national membership charity for carers, Carers UK is both a supportive community and a movement for change.
We work to improve support, services and recognition for anyone living with the challenges of caring, unpaid, for a family member or friend who is ill, frail, disabled or has mental health or addiction problems.
Contact a Family
We provide information, advice and support. We bring families together so they can support each other. We campaign to improve their circumstances, and for their right to be included and equal in society.
Sibs exists to support people who grow up with or have grown up with a disabled brother or sister. It is the only UK charity representing the needs of over half a million young siblings and over one and a half million adult siblings.