In the lead up to the international SMS awareness day (17th November), each week during October, the SMS Foundation UK are releasing a short film about living with Smith-Magenis syndrome. The next short film in our series is titled ‘That Defining Moment’ and broadly focuses on the diagnosis and early planning aspects of Smith-Magenis syndrome. This …
A huge “Thank You” to our Jeans for Genes fundraisers
We would like to say a huge “Thank You” to all those that helped to support last weeks Jeans for Genes Day and the Smith-Magenis Syndrome Foundation. The day was a huge success as schools and workplaces pulled on their jeans to raise awareness and funds for people with genetic disorders. Some of the schools …
A huge “Thank You” to our Jeans for Genes fundraisersRead More
Mum speaks of son’s genetic disorder for Jeans for Genes Day
Joanne Martland and her son Louie are currently featuring in local newspaper, Wigan Today, to help raise awareness for Jeans for Genes day and Smith-Magenis syndrome. Jeans for Genes day is on Friday 22nd September and the Smith-Magenis Syndrome Foundation have partnered with the charity to help increase awareness. In the article Joanne describes her …
Mum speaks of son’s genetic disorder for Jeans for Genes DayRead More
The Marlborough family of Lily Stevenson have been chosen to front a campaign for national charity Jeans for Genes
A Wiltshire family with a child with a rare genetic disorder have been chosen as the face for the online campaign #dreamforgenes. The campaign is to encourage schools to sign up for Jeans for Genes Day – when children and adults wear jeans for the day in exchange for a small donation to the charity. …
Video star Riley helps make people aware of syndrome
A BOGNOR REGIS family of a little boy with a rare genetic disorder has been chosen to front a national charity campaign. Riley Pearson, six, has Smith Magenis Syndrome, to mean he has severe behavourial problems. Along with his dad, Mick, he has become the face of the fundraising bid by Jeans for Genes. The …
Video star Riley helps make people aware of syndromeRead More
The Story Behind the New SMS Foundation Logo
Let me explain Smith-Magenis Syndrome (SMS) through our logo; the Sun, Moon and Stars. The sun and moon represents the body clock. In Smith-Magenis Syndrome the body clock, the circadian rhythm, is flipped. Our children naturally want to be awake at night and asleep during the day. We recognise that our children don’t have a …