Don’t get cut off
The General Data Protection Regulations, which are a government law, are changing on 25th May 2018 and we have got to make sure that any information that we have about you is held correctly so that we …
News
SMS Foundation 2018 AGM and Members Event
Saturday 5th May 2018 Conkers – Award winning attraction at the heart of the National Forest We are delighted to announce that we will be holding our AGM at Conkers in Derbyshire on Saturday 5th …
World SMS Awareness Day and our 25th Anniversary
It’s World Smith-Magenis Syndrome Awareness Day, and the SMS Foundation UK are also celebrating our 25th anniversary – DOUBLE CELEBRATION! Across the UK the SMS Foundation have been …
A huge “Thank You” to our Jeans for Genes fundraisers
We would like to say a huge “Thank You” to all those that helped to support last weeks Jeans for Genes Day and the Smith-Magenis Syndrome Foundation. The day was a huge success as schools …
Mum speaks of son’s genetic disorder for Jeans for Genes Day
Joanne Martland and her son Louie are currently featuring in local newspaper, Wigan Today, to help raise awareness for Jeans for Genes day and Smith-Magenis syndrome. Jeans for Genes day is on Friday …
The Marlborough family of Lily Stevenson have been chosen to front a campaign for national charity Jeans for Genes
A Wiltshire family with a child with a rare genetic disorder have been chosen as the face for the online campaign #dreamforgenes. The campaign is to encourage schools to sign up for Jeans for Genes …
Video star Riley helps make people aware of syndrome
A BOGNOR REGIS family of a little boy with a rare genetic disorder has been chosen to front a national charity campaign. Riley Pearson, six, has Smith Magenis Syndrome, to mean he has severe …
The Story Behind the New SMS Foundation Logo
Let me explain Smith-Magenis Syndrome (SMS) through our logo; the Sun, Moon and Stars. The sun and moon represents the body clock. In Smith-Magenis Syndrome the body clock, the circadian rhythm, is …
SMS Trustees Working with Enable Scoop Charity Award
A huge congratulations to our very own trustees Nigel Over and Hazel Wotherspoon, part of a committee of 8 people, and winners of the award Cracking Campaign of the Year, this week at the Scottish …
Newly Updated SMS Booklet Published
A big thank you to Capital Document Solutions in Edinburgh for printing of copies of the SMS Booklet ready for this weekend’s conference. A special mention to Joyce Campbell who did all the hard …