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Smith-Magenis Syndrome Foundation UK logo

Smith-Magenis Syndrome Foundation UK

Connecting Families, Raising Awareness, Building Futures

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It takes a village

We are delighted to launch our vision for the SMS Township. Inspired by the old proverb ‘It takes a village to raise a child’ the SMS Township is a holistic concept aiming to identify and coordinate all the support and services a person with SMS will need during their lifetime.

To help explain the concept we have prepared a short video to explain some of the ideas we are striving to achieve.

As a charity that supports families living with Smith-Magenis syndrome, we’re already doing many of the things identified in the township concept. We are gradually gathering a wider picture of the complex issues that families (and professionals) face getting the support and services they desperately need.

We want to do more to help! We need your input to help us gather the evidence we need to see our vision come to fruition. If you are struggling to access services or support, or face particular challenges around caring for a person with SMS please share your story with us. Any information you provide will be secure and confidential and not published or used in any way that will identify anyone. Click here to link to our secure form.

Whilst the SMS Township is a vision for holistic support and services (and not an actual place) we believe that given time, expertise, resources, and funding an SMS-specific clinic or adult living placement could eventually become a physical reality. To achieve this we need the input, skills, and dedication of our families and extended community. If you have lived experience, a professional skill, or time to dedicate to help us deliver a vision that will benefit families living with SMS we want to hear from you!

Get involved in the SMS Township

Share your story about the challenges you face caring for a person with Smith-Magenis syndrome

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Join as a family member and we can connect you with families living near you. You will also receive updates of any social meetings, conferences, and fundraising events going on! Joining is quick and easy!

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Please note: This is an answerphone service that will alert us as soon as a message is left. A trustee will call you back as soon as possible – we aim to respond to messages within 24 hours.

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The Smith-Magenis Syndrome (SMS) Foundation UK CIO

Connecting Families, Raising Awareness, Building Futures

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Proud finalist of Keele University Breaking the Mould awards
SCA Terrific trustee award 2020
NUE Best Student contribution

Registered UK Charity (CIO) 1186647   ·  Scottish Charity (SCIO) SC050921    

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