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Smith-Magenis Syndrome Foundation UK logo

Smith-Magenis Syndrome Foundation UK

Connecting Families, Raising Awareness, Building Futures

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  • What is SMS?
    • Overview of SMS?
    • New Diagnosis
    • SMS Behaviours
    • Living with SMS
    • Sleep and SMS
    • Health
    • Facts about Smith-Magenis syndrome
    • Frequently asked questions
    • Find Support for SMS
  • Spotlight on SMS health
    • Vision
    • Sleep
  • Find Support for SMS
    • Small Grant Applications
    • Newlife’s Emergency Equipment Loan Service
    • Emergency hospital documents for download
    • Other Support Organisations
    • Scientific Papers
    • SMS Research
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  • Our SMS Community
    • Become a Member
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Volunteer

Get involved in the SMS Township

The SMS Township is a vision for holistic support and services we believe that given time, expertise, resources, and funding many of the ideas could eventually become a physical reality. To achieve this we need the input, skills, and dedication of our families and extended community. If you have lived experience, a professional skill, or time to dedicate to help us deliver a vision that will benefit families living with SMS we want to hear from you!

Volunteer

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Areas of interest

Please select the areas within the charity that you are interested in supporting: *

Professional experience

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Experience caring for a person with Smith-Magenis syndrome

Declaration

The Smith-Magenis Syndrome (SMS) Foundation UK charity seeks to maintain the highest standards for compliance. 

You declare that you are willing to act as a volunteer of Smith-Magenis Syndrome Foundation UK, understand the organisation’s purposes (charitable objectives) and rules set out in its governing document.

The information you provide to Smith-Magenis Syndrome Foundation UK is true, complete and correct.

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Join as a family member and we can connect you with families living near you. You will also receive updates of any social meetings, conferences, and fundraising events going on! Joining is quick and easy!

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Please note: This is an answerphone service that will alert us as soon as a message is left. A trustee will call you back as soon as possible – we aim to respond to messages within 24 hours.

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The Smith-Magenis Syndrome (SMS) Foundation UK CIO

Connecting Families, Raising Awareness, Building Futures

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Proud finalist of Keele University Breaking the Mould awards
SCA Terrific trustee award 2020
NUE Best Student contribution

Registered UK Charity (CIO) 1186647   ·  Scottish Charity (SCIO) SC050921    

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