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SMS Foundation UK

Supporting SMS families for a positive future

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We are a small charity that supports families living with Smith-Magenis syndrome (SMS)

Never feel isolated or alone. Call our helpline and leave a message: 0300 101 0034 (we aim to respond to messages within 48 hours).

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Events

Save the date image for Activity Weekend 2026

Save the Date, SMS Family Weekend in Liverpool 2026

Come Together 2026 (26–28 June 2026) We’re excited to announce the date for our next SMS Family Residential Weekend, taking place in Liverpool at Barnstondale Activity Centre from Friday 26th to …

Our older SMS group ready for their pedalo

A Day to Remember at Avon Tyrrell

On Saturday 26th July, we hosted our second family activity day – this time in the stunning surroundings of Avon Tyrrell in the New Forest. And let me tell you, the weather gods were smiling on us – …

Lockerbie Manor House, Scotland

Join Us for a Day of Connection and Adventure in Scotland! (Past Event)

SMS Family Activity Day – Sat 20th September 2025 Lockerbie Manor Outdoor Activity Centre, Scotland We’re pleased to invite SMS families from across the UK to our next Family Activity Day at Lockerbie …

Outline schedule of activities planned for our National Event at the Mount Cook Activity Centre in August 2024

Mount Cook Weekend – Schedule of Activities (Past Event)

We are pleased to share the outline schedule for our weekend away at the Mount Cook Activity Centre this August! As you will see, we have a wonderful blend of activities and information-sharing …

SMS Family Adventure Weekend (Past Event)

We would like to provide further information about our national event this year at Mount Cook Activity Centre from Friday 16th August through to Sunday 18th August 2024. Living with SMS can present …

Breaking Tradition: SMS Foundation’s Exciting Family Adventure Weekend in 2024!

For over a decade, the SMS Foundation UK has been uniting families living with Smith-Magenis Syndrome (SMS) through its biennial conferences, creating a space for shared journeys and invaluable …

A brief summary of The SMS Bright Futures 2022 Conference

Firstly, we’d like to say a huge thank you to everyone who attended our SMS Bright Futures 2022 conference last weekend. It was truly wonderful to see so many new faces, as well as those who …

SMS conference

SMS Foundation UK Conference Cancelled for 2021

At the start of this week the UK Government announcements placed the UK into the highest COVID-19 Alert Level. The published de-escalation strategies are such that it is inconceivable that the country …

conference 2021 announcement

Conference 2021 Announcement

A Conference Like No Other Yes, we are still planning to hold an in-person conference on 1st & 2nd May 2021, subject to the easing of COVID-19 restrictions and receiving the necessary permissions …

Prof Chris Oliver presenting at the 2017 SMS Conference

Outline 2019 Conference Schedule

We are pleased to publish our outline schedule for the 2019 conference. Further details of the speakers and their presentations will be available leading up to the conference. Outline Schedule at a …

Board of Trustees and Ann Smith on stage at the 2017 SMS conference

Dates for 2019 Conference Announced

The 2019 SMS Foundation UK Conference Friday 3rd May – Monday 6th May Following the successes of our 2015 and 2017 conferences, we shall be returning to the familiar surroundings of The St John’s …

The St. John's Hotel Solihull venue for the SMS conference 2017

Dates for SMS Conference 2017 Announced

Following the success of our last conference in 2015, we shall once again be returning to the St Johns Hotel in Solihull, from Fri 29th Apr – Mon 1st May 2017. The format will remain the same, with …

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Never feel isolated or alone. Call our helpline: 0300 101 0034

Please note: This is an answer phone service that will alert us as soon as a message is left. A member of the team will call you back as soon as possible – we aim to respond to messages within 48 hours.

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Registered UK Charity (CIO) 1186647

Scottish Charity (SCIO) SC050921

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