We are pleased to publish our outline schedule for the 2019 conference. Further details of the speakers and their presentations will be available leading up to the conference.
Outline Schedule at a Glance
Friday
15.00 | Registration |
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15.30 – 17.30 | Sleep Safely Care Giver Focus Group |
19.00 – 20.30 | Newbies / Newly Diagnosed Welcome Dinner |
19.30 – 22.00 | Family Meet and Greet Social |
Saturday
09.00 – 10.00 | Registration | |||
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09.30 – 10.00 | Welcome / Conference Navigator for Newbies | |||
10.00 – 11.10 | Room Change | |||
Younger Families ↓ | School Age ↓ | Genetics ↓ | Teens/Adults ↓ | |
11.10 – 12.10 | Health Development Therapists – Who and What |
Day Times Prospering in School |
Understanding Genetics Genes and What they tell us |
Behaviour Behaviour Management in teens and adults |
12.10 – 13.30 | Lunch | |||
13.30 – 14.00 14.00 – 15.00 |
Plenary Session – Our SMS Family – Dad’s Three Peaks, Run Away Family Open Space |
Professional Open Space – Health, Education, Social & Care Focus Group | ||
15.00 – 15.30 | Tea/Coffee & Room Change | |||
15.30 – 16.30 | I Want to Communicate Non-Verbal Communication |
Educational Support Accessing Services & Expectations |
Genetics Research Baylor Research Programme |
Health Development Implications of Puberty |
16.30 – 17.30 | Behaviour Early Years Behaviour |
Emergency Equipment Loan | Genetic Interventions NIH Research |
Adult Health Health in Rare Syndromes |
18.00 – 19.30 | Dinner | |||
19.30 – 22.30 | Evening Entertainment – Magical Mayhem & Disco |
Sunday
08.30 – 09.30 | Registration | Focus Group: SMS UK Foundation for Professionals | ||
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09.00 – 09.25 | The SMS Foundation UK Annual General Meeting – Followed by Conference Day Overview | |||
Sleep ↓ | Research & Development ↓ | Adults ↓ | ||
09.30 – 10.30 | Sleep Safely Sleep Security Research Project |
Neuropsychiatry Sensory Behaviours |
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10.30 – 11.00 | Coffee | |||
11.00 – 12.00 | Sleep Hygiene Sleep Hygiene Programmes |
Behaviour Management Vagus Nerve Stimulation |
Day Times – Planning Person Centred Plans and Transition Plans |
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12.00 – 13.30 | Lunch | |||
13.30 – 14.30 | Sleep Medications Medical Approaches to Sleep |
Healthcare Healthcare for all ages |
Day Times – Employment/Learning ENABLE Works / Breaking the Barriers |
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14.30 – 14.40 | Room Change | |||
14.40 – 15.40 | Accessing Equipment Selection, Obstacles, Grants |
Medications Understanding the licensing of CBD Oil for genetic conditions in the UK |
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16.15 – 17.30 | Open Space – It’s Your Foundation / Conference Q&A. Followed by Closing Thanks | |||
18.00 – 19.30 | BBQ Dinner | |||
19.30 – 22.30 | Evening Entertainment |
Monday
Family Chill Time
Relax in our coffee lounge with families and conference delegates before heading home.
A light lunch with be provided.