SMS Bright Futures 2022 Conference and 30th anniversary celebrations
Thank you to all the families, speakers, sponsors, and volunteers for attending our 2022 conference!
#smsconf22
Conference sponsored by:
Why Attend?
- Connect and meet with other families who understand
- Learn about the different aspects of the syndrome
- Find out about latest SMS research and campaigns
- Find emotional support
- Meet the experts and ask questions
Key topics and outline schedule
Friday 29th April and Monday 2nd May are our informal community social gatherings, providing an opportunity for families to meet others. The additional days also allow families the chance to settle into the hotel on Friday ahead of the conference and a more relaxed check-out on the bank holiday Monday ready for the journey home.
The main conference spans Saturday 30th and Sunday 1st and the tables below offer an outline guide to topics we hope to cover. Please note that we are still in the process of confirming speakers so there is a possibility that topics could switch days, or be removed, due to issues with availability.
Friday 29th
7pm – 11pm (evening social)
- Family meet and greet. Finger food provided.
Saturday 30th
9am – 5.30pm. Conference registration open from 9am.
- 30 Years of Supporting Families
- Planning for the Future
- Accessing Benefits
- Family Wellbeing and Mental Health
- UK Genomic Strategy
- Gene Journey Along Chromosome 17p11
- Medical Management of SMS
- Sleep in SMS
Sunday 1st
9am – 5.30pm. Conference registration open from 8.30am.
- Understanding Behaviours and Interventions
- Common SMS Health Matters
- Communication
- Diet, Weight and Obesity
- Education
- Adult Life
- Accessing Support, Services and Equipment
Monday 2nd
9am – 1pm (morning social)
- Chill out and say farewell social gathering. Finger food provided.
Special Guest
Dr. Ann Smith
We are delighted to announce that Dr. Ann Smith will be attending and speaking at our conference this year (travel restrictions permitting).
Dr. Ann Smith is a retired senior genetic counsellor from the National Institutes of Health, who along with the late Dr. Ellen Magenis first described the syndrome in 1982.
Social Events
Newbies Dinner (Friday night)
Friday Family Meet and Greet (Friday Night)
30th Anniversary SMS Celebration Dinner, Entertainment and Disco
Family Karaoke and Disco
Conference Costs
Reservations are offered on guaranteed MAXIMUM cost basis, should we be successful in securing grant funding then we will be introducing certain concessions to reduce the total cost. The tables below can be used as a guide to your conference costs.
Delegate Fees (per day)
Price includes lunch and refreshments. Child prices also include care provision.
*Delegate fees applicable for 2 conference days only.
| Family Members | |
| Adult | £35 |
| Child | £35 |
| SMS person | Free |
| Professional | |
| Adults | £50 |
Accommodation (per night)
Room rates include breakfast.
| Single | £70 |
| Double/Twin | £80 |
| Small Family/Triple | £90 |
| Family (2 +2) | £100 |
| Large Family (2 + 3) | £110 |
Meal Rates (per person)
Price for conference evening meals on Saturday and/or Sunday (including SMS 30th celebration dinner).
| Adult | £22.00 |
| Child | £11.00 |