A sibling’s story of the Barnstondale activity weekend
Hi, I am William Stevenson, a younger brother to Lily Stevenson who has Smith-Magenis syndrome. This is my third SMS family activity weekend, and I’ve been asked to share my story about the …
Activities
Upcoming and past SMS Activities that take place either in-person or online.
Help shape the future of support for people with SMS
We’re inviting our community to take part in the 2026 SMS Community Survey. This survey is about understanding real experiences of living with Smith-Magenis syndrome, from early years through to …
Webinar Recording: Power of Attorney and Deputyship (Past Event)
Tuesday 29th October 2024 19:00 – 20:00 We invite you to join us for a webinar covering the topics of Power of Attorney and Deputyship, presented by Kerry Wagner at Irwin Mitchell. Webinar …
Transitions Community Chat (Past Event)
Wednesday 14th September at 11 am and 7 pm Do you have a child starting primary school, or perhaps an adult about to leave school? Transitions are a scary place for parents and carers of people with …
Celebrating International SMS Awareness Day
Please see below a selection of events and activities taking place over the next week in celebration of the International Smith-Magenis Syndrome Awareness Day on Wednesday 17th November!! We would …
Teddy Bears’ Picnic – schedule for the weekend
You are invited to join us for our Virtual Teddy Bears’ Picnic. We have lots of activities over the weekend where you can join us online. All links to zoom meetings will be shared on our Facebook and …
300 picnic boxes make their way to UK SMS members
300 picnic boxes are gradually making their way to all the people with Smith-Magenis syndrome on our UK membership list. The aim of the picnic boxes is to encourage as many people within our SMS …
Easter Card and Invitations sent to UK SMS Members
In the lead-up to our next virtual event, the ‘Teddy Bears’ Picnic’ on the 1st and 2nd May, the SMS Foundation has recently sent out approximately 300 Easter cards to every person on …
This week’s community Zoom drop-in chat with Jayne Dainty of SOS Care Services
This week’s community Zoom drop-in chat is with Jayne Dainty of SOS Care Services. Jayne will be sharing her insights into meeting the needs of those with SMS from a care provider’s …
SMS Foundation 2018 AGM and Members Event
Saturday 5th May 2018 Conkers – Award winning attraction at the heart of the National Forest We are delighted to announce that we will be holding our AGM at Conkers in Derbyshire on Saturday 5th …
A huge “Thank You” to our Jeans for Genes fundraisers
We would like to say a huge “Thank You” to all those that helped to support last weeks Jeans for Genes Day and the Smith-Magenis Syndrome Foundation. The day was a huge success as schools …