Week 5, and last but by no means least, the final film in our series! Bright Stars Shining a Light is a video about living with someone with Smith-Magenis syndrome, and in this film we asked a number of different families the following questions:
- What do they like to do for fun?
- Describe your child in three words
- What is your child’s favourite TV show?
This touching film reveals a small insight into family life with SMS. It’ll make you laugh and bring a tear to your eye in equal measure to see how each family describes the challenges and fun of living with someone with SMS. There is certainly a very repeating theme in the light-hearted choice of “three” words each family uses to describe their child!
The SMS Foundation would like to thank all those who helped to make these films, in particular the families willing to provide an insight into their experiences of living with SMS, including: Bernie Ogilvie, Lynn Archer and Emma Monks, Anna and Matt Ferreira, Tony and Rachel Stokes, Heather and Jon Gunnell, Dawn and Richard Arnold, Sue Rudderham and Roy Clarke, Diane Erth, Christine and Tim Dudley, and Kelly Heeley.
Finally, an extra special “Thank You” to Salli Hunt for coordinating the films (as well as featuring in them) and the super talented videographer Stephen Crawford.