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SMS Foundation UK

Supporting SMS families for a positive future

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We are a small charity that supports families living with Smith-Magenis syndrome (SMS)

Never feel isolated or alone. Call our helpline and leave a message: 0300 101 0034 (we aim to respond to messages within 48 hours).

Newly Diagnosed?

SMS Stories

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Read personal experiences from individuals with Smith-Magenis syndrome and their families. These stories offer real-life insight into daily life with SMS, the challenges, triumphs, and moments that connect our community.


Father and son at SMS conference 2022

Meet the Cobby Family: Their Life with SMS in Ibiza

The Grainger family together

A Carer’s Journey with Smith-Magenis Syndrome

Katherine with her sisters Charlotte and Hannah

Katherine’s Climb and the Bond of Sisterhood

Ellen Wotherspoon and her remarkable sporting journey

Louie Martland: Thriving in the World of Hospitality

Elizabeth proudly wears her cadet uniform ready for Armed Forces Day

Elizabeth’s Inspiring Journey: Marching with Confidence on Armed Forces Day

Lily on her work experience rolling up the hair of a mannequin

Lily’s Dream Comes True: A Remarkable Work Experience Journey

Harry’s Story

Caden Bond on his tricycle

Caden’s Story

SMS Foundation UK logo

Never feel isolated or alone. Call our helpline: 0300 101 0034

Please note: This is an answer phone service that will alert us as soon as a message is left. A member of the team will call you back as soon as possible – we aim to respond to messages within 48 hours.

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Become a Member of The SMS Foundation UK

Connect with SMS families in your region and be the first to receive updates on any social meetings, conferences, and fundraising events going on!

Family & Carer Membership
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Registered UK Charity (CIO) 1186647

Scottish Charity (SCIO) SC050921

Registered with the Fundraising Regulator

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