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SMS Foundation UK

Supporting SMS families for a positive future

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We are a small charity that supports families living with Smith-Magenis syndrome (SMS)

Never feel isolated or alone. Call our helpline and leave a message: 0300 101 0034 (we aim to respond to messages within 48 hours).

Newly Diagnosed?

Katherine’s Climb and the Bond of Sisterhood

April 9, 2024

Growing up, Katherine Scott-Davies was surrounded by a supportive and loving family that believed in her potential and have encouraged her every step of the way. Born in 1998, Katherine was diagnosed with Smith-Magenis Syndrome (SMS) a year and a half after her birth. As we celebrate National Siblings Day, we also shine a spotlight on the extraordinary bond shared between Katherine and her two sisters, Charlotte and Hannah.

Katherine with her sisters Charlotte and Hannah
Katherine with her sisters Charlotte and Hannah

Katherine’s journey was profoundly shaped by the love and aspirations of her grandfather (Rachel’s father), a passionate walker, who had climbed Snowdon a number of times during his lifetime but had hoped to climb with Katherine and see her reach the summit. Sadly poor health prevented him from achieving that last climb. Nevertheless, Katherine’s family pledged to take on the challenge and support The SMS Foundation UK. Together with her parents, Rachel and Paul, and supported by sisters Charlotte and Hannah, they undertook a remarkable expedition to conquer Snowdon’s summit, raising £2,000 for the SMS Foundation UK along the way.

Katherine and her family ready to climb Mount Snowdon
Katherine with mum Rachel, and sisters Charlotte and Rachel and their boyfriends, ready to climb Mount Snowdon
Katherine making her way up Mount Snowdon
Katherine making her way up Mount Snowdon
Katherine during her climb
Katherine during her climb
Katherine reaches the summit - an incredible achievement!
Katherine reaches the summit – an incredible achievement!
Katherine with mum, Rachel, and stepfather, Paul, at summit
Katherine with mum, Rachel, and stepfather, Paul, at summit

Rachel and Katherine attended their first SMS conference in London in 2003, describing it as ‘absolutely amazing and worthwhile, with so much to take away, and the biggest value was being able to talk to other families and share stories and experiences’. Since then Katherine and Rachel have attended several other SMS conferences along with sisters, Charlotte and Hannah.

At 2 years, appeared in one of the first SMS Guidelines for families (2003)
At 2 years, appeared in one of the first SMS Guidelines for families (2003)
Katherine at the 2015 SMS Conference with her SMS friends.
Katherine at the 2015 SMS Conference with her SMS friends.
Katherine with Ann Smith at the 2015 SMS Conference
Katherine with Ann Smith at the 2015 SMS Conference

Throughout her upbringing, Katherine and her family resided on the premises of their family-run garden centre business, dedicating most of their time to work throughout the week. Katherine was able to get involved and help out, gaining some valuable work experience and helping her parents with the book-keeping by collecting receipts, adding them up, and putting them in the book.

Katherine marking up plants to sell at the garden centre
Katherine marking up plants to sell at the garden centre
Katherine planting hanging baskets
Katherine planting hanging baskets
Katherine helping out and planting seeds
Katherine helping out and planting seeds
Katherine helping with the bookkeeping
Katherine helping with the bookkeeping

From her early years in mainstream primary school with specialist provision to her secondary education at St Joseph’s, Katherine thrived in well-structured environments that nurtured her potential. With the support of her family and education providers, she was able to access the GCSE curriculum and participate in extracurricular activities that enriched her experience. Her positive experiences at primary and secondary school paved the way for her continued success at Derwen College where she developed essential life skills, participated in the Duke of Edinburgh awards, and flourished amidst a supportive community.

Katherine with her friends at primary school
Katherine with her friends at primary school
Katherine on sports day at primary school
Katherine on sports day at primary school
Katherine climbing Cat Bells with her grandparents at 7yrs
Katherine climbing Cat Bells with her grandparents at 7yrs

While at Derwen College, Katherine had the chance to refine her independent living abilities through courses covering hospitality, catering, and essential life skills. The college not only provided academic education but also fostered social connections and personal development—a holistic approach that empowered Katherine to thrive.

Katherine on a catering course at St Joseph's
Katherine on a catering course at St Joseph’s
Katherine canoeing for her Duke of Edinburgh award
Katherine canoeing for her Duke of Edinburgh award
Katherine canoeing with other students at St Joseph's
Katherine canoeing with other students at St Joseph’s
A very proud moment, Katherine on her graduation day
A very proud moment, Katherine on her graduation day

In addition to her academic pursuits, Katherine channeled her passion for music by learning to play the piano and achieving grade 3, as well as participating in performances at concerts in the village hall.

Today, Katherine resides in an adult supported living house along with three learning-disabled adults, where she continues to lead a fulfilling and active life. Her busy life includes working part-time in a local café along with another job for The National Trust Erddig estate, in Wrexham. An avid reader, Katherine visits the library regularly. Additionally, she actively engages in a group named Emerge, where she participates in dance, drama, and music activities alongside adults with disabilities. Katherine thoroughly enjoys taking part in the group’s productions. Every Wednesday evening, she joins an adults-with-disabilities disco, and once a month, she attends another disco at the Flamingo Lounge. Singing karaoke and assisting with bingo are among Katherine’s true passions.

Despite her bustling schedule Katherine still manages to spend cherished weekends and quality time at home with her family. We draw inspiration from the dedication of Katherine’s mother, Rachel, as well as the extraordinary bond between Katherine and her sisters, Charlotte and Hannah, who continue to be her rock offering love, laughter, and support whenever she needs it.

Category: Parent & Carer Voices
Previous Post:Ellen Wotherspoon and her remarkable sporting journey
Next Post:A Carer’s Journey with Smith-Magenis SyndromeThe Grainger family together
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Never feel isolated or alone. Call our helpline: 0300 101 0034

Please note: This is an answer phone service that will alert us as soon as a message is left. A member of the team will call you back as soon as possible – we aim to respond to messages within 48 hours.

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