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SMS Foundation UK

Supporting SMS families for a positive future

We are a small charity that supports families living with Smith-Magenis syndrome (SMS)

Never feel isolated or alone. Call our helpline and leave a message: 0300 101 0034 (we aim to respond to messages within 48 hours).

Newly Diagnosed?

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This programme offers four essential services: Community Wellbeing Support, Online Resources, Advocacy, Referrals, and Small Grants, as well as the innovative SMS Passport.

Education Support Service Theory of Change Model

About Leeann Stevenson

For the past eight years, Leeann has been at the heart of our communications, information and branding as a Trustee of the charity. The transformation of the charity in this time has been exceptional. Leeann’s dedication has resulted in the Foundation becoming the go-to organisation for information on Smith-Magenis syndrome not only for the United Kingdom but across the world.

Leeann is the mother to three children, Lily who is 14 (SMS), William who is 10, and Teddy who is seven. Leeann is a director of a small Web Design agency in Marlborough, Wiltshire that specialises in charity websites and marketing.