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Smith-Magenis Syndrome Foundation UK logo

Smith-Magenis Syndrome Foundation UK

Connecting Families, Raising Awareness, Building Futures

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Leeann Stevenson

For the past eight years, Leeann has been at the heart of our communications, information and branding as a Trustee of the charity. The transformation of the charity in this time has been exceptional. Leeann’s dedication has resulted in the Foundation becoming the go-to organisation for information on Smith-Magenis syndrome not only for the United Kingdom but across the world.

Leeann is the mother to three children, Lily who is 14 (SMS), William who is 10, and Teddy who is seven. Leeann is a director of a small Web Design agency in Marlborough, Wiltshire that specialises in charity websites and marketing.

Cerebra Beond project website homepage

Launch of ‘Beond’ a new project with our partners at the Cerebra Network

November 17, 2022 by Leeann Stevenson

We’re delighted to announce the launch of ‘Beond’ a new pioneering study with our …

Read moreLaunch of ‘Beond’ a new project with our partners at the Cerebra Network
Proud finalist of Keele University Breaking the Mould awards

We’ve been shortlisted for an Award!

September 27, 2022 by Leeann Stevenson

We are delighted to announce that we have been shortlisted for the Keele University ‘Breaking …

Read moreWe’ve been shortlisted for an Award!

Transitions Community Chat (online)

September 12, 2022 by Leeann Stevenson

Wednesday 14th September at 11 am and 7 pm Do you have a child starting primary school, or perhaps …

Read moreTransitions Community Chat (online)
Medical management questionnaire graphic

Research Study into Medical and Behaviour Management

July 20, 2022 by Leeann Stevenson

We want every individual with SMS to have coordinated care! For all our SMS families, care is never …

Read moreResearch Study into Medical and Behaviour Management
affection in SMS

Affection! Study Participants Needed

July 13, 2022 by Leeann Stevenson

It’s something we always say is an endearing quality in SMS, but there is virtually nothing in …

Read moreAffection! Study Participants Needed

Does your SMSer get the support they need in their education setting?

June 22, 2022 by Leeann Stevenson

Please share your EHCP/CSPs with us. We want to draw out provisions and good practice to help every …

Read moreDoes your SMSer get the support they need in their education setting?
residential options research project

Research into Residential Options for Adults with SMS

June 10, 2022 by Leeann Stevenson

We kick off our first summer 2022 intern project with Susan Over, who is exploring residential …

Read moreResearch into Residential Options for Adults with SMS
Ann Smith announcing Alex Jowitt award

Alex Jowitt Award 2022

May 25, 2022 by Leeann Stevenson

The Alex Jowitt Award is to recognise member contributions to raising awareness of Smith-Magenis …

Read moreAlex Jowitt Award 2022
Smith-Magenis Syndrome Foundation UK logo

Introducing six new intern placements for 2022

May 18, 2022 by Leeann Stevenson

We would like to welcome 6 new interns for the summer of 2022. They will be taking on a range of …

Read moreIntroducing six new intern placements for 2022

A brief summary of The SMS Bright Futures 2022 Conference

May 13, 2022 by Leeann Stevenson

Firstly, we’d like to say a huge thank you to everyone who attended our SMS Bright Futures …

Read moreA brief summary of The SMS Bright Futures 2022 Conference
Alex Jowitt Award

The Alex Jowitt Award, nominations are now open!

April 9, 2022 by Leeann Stevenson

Do you know someone who has made an outstanding contribution to raising awareness for Smith-Magenis …

Read moreThe Alex Jowitt Award, nominations are now open!
person filling out a survey

Education Survey for Primary Carers in the UK

March 9, 2022 by Leeann Stevenson

The SMS Foundation is trying to build an accurate picture of education provision across the UK. We …

Read moreEducation Survey for Primary Carers in the UK
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The Smith-Magenis Syndrome (SMS) Foundation UK CIO

Connecting Families, Raising Awareness, Building Futures

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Proud finalist of Keele University Breaking the Mould awards
SCA Terrific trustee award 2020
NUE Best Student contribution

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