Disability History Month: SMS and Our Foundation
Disability History Month offers a valuable opportunity to celebrate the stories of individuals, …
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For the past eight years, Leeann has been at the heart of our communications, information and branding as a Trustee of the charity. The transformation of the charity in this time has been exceptional. Leeann’s dedication has resulted in the Foundation becoming the go-to organisation for information on Smith-Magenis syndrome not only for the United Kingdom but across the world.
Leeann is the mother to three children, Lily who is 14 (SMS), William who is 10, and Teddy who is seven. Leeann is a director of a small Web Design agency in Marlborough, Wiltshire that specialises in charity websites and marketing.
Disability History Month offers a valuable opportunity to celebrate the stories of individuals, …
Since getting a diagnosis the Cobby family have gone above and beyond to raise awareness for SMS and …
Date: Wednesday 4th December 2024Time: 19:00 – 20:00 Details A guide to navigating the process …
Tuesday 29th October 2024 19:00 – 20:00 We invite you to join us for a webinar covering the …
As part of Carers Week (10th – 16th June), we share the story of Laurie Grainger and her …
We are pleased to share the outline schedule for our weekend away at the Mount Cook Activity Centre …
Earlier this week, we posted a brief survey on our Facebook page, posing the question, “What …
As we celebrate National Siblings Day, we also shine a spotlight on the extraordinary bond shared …
We would like to provide further information about our national event this year at Mount Cook …
For over a decade, the SMS Foundation UK has been uniting families living with Smith-Magenis …
Introducing a Fresh Look for 2023 We are thrilled to unveil our rebranded identity, marking a …
At the heart of our small charity is a big vision we are working tirelessly on to support families …
It is with gratitude that we acknowledge the contributions made by Nigel Over during his time as …
At the SMS Foundation UK, we take immense pride in celebrating individuals who are dedicated to …
Meet Louie Martland, a remarkable 17-year-old from Wigan, Greater Manchester, who has shown …
In the pursuit of a more inclusive and supportive future for individuals and families living with …
At just 16 years old, Elizabeth Dudley from Belton in South Yorkshire has proven that determination …
At the age of 16, Lily Stevenson has recently completed her school work experience placement at …
We’re delighted to announce the launch of ‘Beond’ a new pioneering study with our …
We are delighted to announce that we have been shortlisted for the Keele University ‘Breaking …
Wednesday 14th September at 11 am and 7 pm Do you have a child starting primary school, or perhaps …
We want every individual with SMS to have coordinated care! For all our SMS families, care is never …
It’s something we always say is an endearing quality in SMS, but there is virtually nothing in …
Please share your EHCP/CSPs with us. We want to draw out provisions and good practice to help every …