Breaking Tradition: SMS Foundation’s Exciting Family Adventure Weekend in 2024!
For over a decade, the SMS Foundation UK has been uniting families living with Smith-Magenis …
The SMS Foundation UK’s Rebranding Journey
Introducing a Fresh Look for 2023 We are thrilled to unveil our rebranded identity, marking a …
Supporting SMS Families for a Positive Future: Our 5-Year Development Strategy
At the heart of our small charity is a big vision we are working tirelessly on to support families …
Recognising Nigel Over’s dedication to The SMS Foundation: Our heartfelt appreciation
It is with gratitude that we acknowledge the contributions made by Nigel Over during his time as …
Ellen Wotherspoon and her remarkable sporting journey
At the SMS Foundation UK, we take immense pride in celebrating individuals who are dedicated to …
Louie Martland: Thriving in the World of Hospitality
Meet Louie Martland, a remarkable 17-year-old from Wigan, Greater Manchester, who has shown …
Bridging the Gap: Insights from the SMS Community Survey
In the pursuit of a more inclusive and supportive future for individuals and families living with …
Elizabeth’s Inspiring Journey: Marching with Confidence on Armed Forces Day
At just 16 years old, Elizabeth Dudley from Belton in South Yorkshire has proven that determination …
Lily’s Dream Comes True: A Remarkable Work Experience Journey
At the age of 16, Lily Stevenson has recently completed her school work experience placement at …
Launch of ‘Beond’ a new project with our partners at the Cerebra Network
We’re delighted to announce the launch of ‘Beond’ a new pioneering study with our …
We’ve been shortlisted for an Award!
We are delighted to announce that we have been shortlisted for the Keele University ‘Breaking …
Transitions Community Chat (online)
Wednesday 14th September at 11 am and 7 pm Do you have a child starting primary school, or perhaps …
Research Study into Medical and Behaviour Management
We want every individual with SMS to have coordinated care! For all our SMS families, care is never …
Affection! Study Participants Needed
It’s something we always say is an endearing quality in SMS, but there is virtually nothing in …
Does your SMSer get the support they need in their education setting?
Please share your EHCP/CSPs with us. We want to draw out provisions and good practice to help every …
Research into Residential Options for Adults with SMS
We kick off our first summer 2022 intern project with Susan Over, who is exploring residential …
Alex Jowitt Award 2022
The Alex Jowitt Award is to recognise member contributions to raising awareness of Smith-Magenis …
Introducing six new intern placements for 2022
We would like to welcome 6 new interns for the summer of 2022. They will be taking on a range of …
A brief summary of The SMS Bright Futures 2022 Conference
Firstly, we’d like to say a huge thank you to everyone who attended our SMS Bright Futures …
The Alex Jowitt Award, nominations are now open!
Do you know someone who has made an outstanding contribution to raising awareness for Smith-Magenis …
Education Survey for Primary Carers in the UK
The SMS Foundation is trying to build an accurate picture of education provision across the UK. We …
Are you considering adopting a child with Smith-Magenis syndrome?
Western Bay Adoption Service has approached us to help them find a forever home for a little girl …
Caregivers’ experience of sleep management in SMS: research study published on Orphanet Journal of Rare Diseases
We are delighted to announce that the first of two research articles for the Safe Sleeping project, …
Charities write a letter to Dr. Liam Fox over concerns about Down Syndrome Bill
The SMS Foundation UK has united with a group of eight charities, writing a letter to Dr. Liam Fox …