• Skip to main content
  • Skip to header right navigation
  • Skip to site footer
  • Home
  • About Us
    • Our Vision, Mission and Values
    • How We Help
    • Our Trustees
    • Our Staff
    • Our Regional Parent Supporters
    • Our Professional Board
    • Newsletters
    • Annual Reports
  • News
    • News
    • SMS Family Events
    • Activities
    • Conferences
    • Research
    • Blog
    • Newsletters
  • Get Involved
    • Fundraising Events
    • Become a Member
    • Ways to Donate
    • Become a Regular Donor
    • Payroll Giving
    • Fundraising Ideas
  • Shop
    • Basket
  • Contact
  • Membership
  • Donate
Smith-Magenis Syndrome Foundation UK logo

Smith-Magenis Syndrome Foundation UK

Connecting Families, Raising Awareness, Building Futures

  • What is SMS?
    • Overview of SMS
    • New Diagnosis
    • A Guide to SMS Booklet
    • SMS Behaviours
    • Sleep in SMS
    • Living with SMS
    • Health
    • Facts about Smith-Magenis syndrome
    • Videos about SMS
    • Frequently asked questions
    • Find Support for SMS
  • Spotlight on SMS health
    • Vision
    • Sleep
  • Find Support for SMS
    • Small Grant Applications
    • Newlife’s Emergency Equipment Loan Service
    • Emergency hospital documents for download
    • Other Support Organisations
    • Scientific Papers
    • SMS Research
  • Our SMS Community
    • SMS Conference 2022
    • Become a Member
    • Regional Parent Supporters
    • Stories from our SMS Community
  • Home
  • About Us
    • Our Vision, Mission and Values
    • How We Help
    • Meet the Trustees
    • Meet the Staff
    • Regional Parent Supporters
    • Our professional board
    • Newsletters
    • Annual Reports
  • SMS Conference 2022
  • News
    • SMS Family Events
    • Activities
    • Conferences
    • Research
    • Blog
  • Get Involved
    • Events
    • Become a Member
    • Ways to Donate
    • Become a Regular Donor
    • Payroll Giving
    • Fundraising Ideas
    • Support My Smile Campaign
  • Shop
    • My Basket
  • What is SMS?
    • Overview of SMS?
    • New Diagnosis
    • SMS Behaviours
    • Living with SMS
    • Sleep and SMS
    • Health
    • Facts about Smith-Magenis syndrome
    • Frequently asked questions
    • Find Support for SMS
  • Spotlight on SMS health
    • Vision
    • Sleep
  • Find Support for SMS
    • Small Grant Applications
    • Newlife’s Emergency Equipment Loan Service
    • Emergency hospital documents for download
    • Other Support Organisations
    • Scientific Papers
    • SMS Research
    • Videos
  • Our SMS Community
    • Become a Member
    • Regional Parent Supporters
    • Stories from our SMS Community
  • Contact

Leeann Stevenson

For the past eight years, Leeann has been at the heart of our communications, information and branding as a Trustee of the charity. The transformation of the charity in this time has been exceptional. Leeann’s dedication has resulted in the Foundation becoming the go-to organisation for information on Smith-Magenis syndrome not only for the United Kingdom but across the world.

Leeann is the mother to three children, Lily who is 14 (SMS), William who is 10, and Teddy who is seven. Leeann is a director of a small Web Design agency in Marlborough, Wiltshire that specialises in charity websites and marketing.

A brief summary of The SMS Bright Futures 2022 Conference

May 13, 2022 by Leeann Stevenson

Firstly, we’d like to say a huge thank you to everyone who attended our SMS Bright Futures …

Read moreA brief summary of The SMS Bright Futures 2022 Conference
Alex Jowitt Award

The Alex Jowitt Award, nominations are now open!

April 9, 2022 by Leeann Stevenson

Do you know someone who has made an outstanding contribution to raising awareness for Smith-Magenis …

Read moreThe Alex Jowitt Award, nominations are now open!
person filling out a survey

Education Survey for Primary Carers in the UK

March 9, 2022 by Leeann Stevenson

The SMS Foundation is trying to build an accurate picture of education provision across the UK. We …

Read moreEducation Survey for Primary Carers in the UK

Are you considering adopting a child with Smith-Magenis syndrome?

March 9, 2022 by Leeann Stevenson

Western Bay Adoption Service has approached us to help them find a forever home for a little girl …

Read moreAre you considering adopting a child with Smith-Magenis syndrome?
OJRD logo

Caregivers’ experience of sleep management in SMS: research study published on Orphanet Journal of Rare Diseases

February 11, 2022 by Leeann Stevenson

We are delighted to announce that the first of two research articles for the Safe Sleeping project, …

Read moreCaregivers’ experience of sleep management in SMS: research study published on Orphanet Journal of Rare Diseases
genetic disorders charity logos

Charities write a letter to Dr. Liam Fox over concerns about Down Syndrome Bill

January 10, 2022 by Leeann Stevenson

The SMS Foundation UK has united with a group of eight charities, writing a letter to Dr. Liam Fox …

Read moreCharities write a letter to Dr. Liam Fox over concerns about Down Syndrome Bill
The SMS Foundation AGM 2019

Notification of Annual General Meeting

January 5, 2022 by Leeann Stevenson

Notification of Annual General Meeting of the Smith-Magenis Syndrome (SMS) Foundation UK CIO …

Read moreNotification of Annual General Meeting
community drop in zoom chat

Celebrating International SMS Awareness Day

November 10, 2021 by Leeann Stevenson

Please see below a selection of events and activities taking place over the next week in celebration …

Read moreCelebrating International SMS Awareness Day

Newsletter Summer 2021

July 23, 2021 by Leeann Stevenson

This is a special edition newsletter reporting on the success of the online Teddy Bears’ Picnic, …

Read moreNewsletter Summer 2021
Stay Awake Challenge - woman awake in bed

The SMS Stay Awake Challenge is back!

June 4, 2021 by Leeann Stevenson

Join Team SMS on Saturday 19 and Sunday 20 June 2021 to take part in our SMS Stay Awake …

Read moreThe SMS Stay Awake Challenge is back!
Fulfilling Futures logo

Fulfilling Futures – We need your help

May 20, 2021 by Leeann Stevenson

Supporting families for nearly 30 years Since 1992, the SMS Foundation UK has helped over 300 …

Read moreFulfilling Futures – We need your help
Teddy Survey

Teddy Bears’ Picnic Feedback – Survey closes on 16th May

May 17, 2021 by Leeann Stevenson

Our Teddy Bears’ Picnic survey ends on Sunday 16th May and we need your help! Can you spare …

Read moreTeddy Bears’ Picnic Feedback – Survey closes on 16th May
  • Go to page 1
  • Go to page 2
  • Go to page 3
  • Interim pages omitted …
  • Go to page 6
  • Next →

Join our Community

Join as a family member and we can connect you with families living near you. You will also receive updates of any social meetings, conferences, and fundraising events going on! Joining is quick and easy!

Join
View the international map of families diagnosed with SMS

Never feel isolated or alone.
Call our helpline: 0300 101 0034
Other ways to Contact Us

Please note: This is an answerphone service that will alert us as soon as a message is left. A trustee will call you back as soon as possible – we aim to respond to messages within 24 hours.

The Smith-Magenis Syndrome (SMS) Foundation UK CIO

Connecting Families, Raising Awareness, Building Futures

Sign-up to receive the latest news and information direct to your inbox

Please enter your email address below if you would like us to send you emails with our latest news, articles, and information about SMS.
To join as a full member, please click here.
Your data will be processed in accordance with our privacy notice.

SCA Terrific trustee award 2020
NUE Best Student contribution

Registered UK Charity (CIO) 1186647   ·  Scottish Charity (SCIO) SC050921    

Copyright © 2021 Smith-Magenis Syndrome (SMS) Foundation UK CIO · Privacy Policy · SMS Disclaimer · Terms and Conditions