Rareminds Counselling Service

Living with Smith-Magenis syndrome can bring many unique challenges, and looking after your own wellbeing is just as important as caring for your child or loved one. That’s why the SMS Foundation UK has partnered with Rareminds, a specialist counselling organisation supporting families living with rare conditions.

Rareminds are highly experienced in offering emotional support to parents, carers, and family members. They understand the particular pressures of caring for someone with complex needs and provide a safe, understanding space to talk.

Why we’ve partnered with Rareminds

We know that emotional wellbeing is often overlooked when families are busy navigating medical appointments, education, and daily life. By working with Rareminds, we can ensure that families living with Smith-Magenis syndrome have access to professional support tailored to their needs.

Confidential and Professional Support

All counselling is completely confidential. Sessions are held directly between you and the Rareminds counsellor. The SMS Foundation is not given any information about referrals or what is discussed — your privacy is fully respected at all times.

Costs Covered by the SMS Foundation

There is no cost to families for accessing this counselling service. The SMS Foundation covers the cost of sessions so that financial worries do not stand in the way of getting support.

This counselling service has limited spaces. If we reach capacity, new referrals will be placed on a waiting list until a place becomes available. At present, we do have capacity to accept referrals.

How it Works

• The SMS Foundation makes the initial referral via email to Rareminds on your behalf.
• Once introduced, Rareminds will take care of all communication and arrange your counselling sessions.
• The service offers both individual counselling (for a parent or carer) and couples/family sessions if you would like to attend together.