WEBINAR
Date: 14th May 2026
Time: 19:00 (GMT)
Register for this event
Please join us for a webinar providing an update on the SMS Springboard Project, together with early findings from the 2026 SMS Community Survey. Using routinely collected healthcare data, the Springboard Project is exploring key questions about health and wellbeing in Smith-Magenis syndrome, including how health changes as people get older and why outcomes may vary between individuals. Early insights will also be shared from the 2026 SMS Community Survey, which captures real experiences of living with Smith-Magenis syndrome across areas such as education, health, mental health, daily living, employment, and support services. The session will focus on sharing progress to date and highlighting what we are learning at this early stage.
The webinar will be co-presented by Dr Kate Baker and Dr Millie Wagstaff from the Department of Genetics at the University of Cambridge, and Leeann Stevenson, Executive Director of the SMS Foundation UK.
The webinar will be recorded automatically, and all registered attendees will receive a link to the recording once it has been published.
Family Activity Weekend 2026 – Bookings Closed