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SMS Foundation UK

Supporting SMS families for a positive future

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We are a small charity that supports families living with Smith-Magenis syndrome (SMS)

Never feel isolated or alone. Call our helpline and leave a message: 0300 101 0034 (we aim to respond to messages within 48 hours).

Newly Diagnosed?

Person Centred Planning

illustration of a child learning in a classroom

Understanding the whole child: Regulation, relationships and readiness to learn 

Understanding the whole child is fundamental to supporting person centred planning. They are a person first and whatever comes after is important but secondary to the individual we are supporting. In …

Graphic illustration of a group of professionals planning around a table

The Child Before the Plan: Why Person Centred Planning Matters in SEND Education

Author: George Fox brings over 25 years of specialist education and SEND leadership experience, alongside a deep, practice-based professional understanding of SMS…. Read more This article is the …

infographic showing the golden thread running through an EHCP

Making the EHCP Work for a Child With SMS

We are all awaiting the government’s next steps on special education and are keen to understand what future changes may come. While the system may shift in the coming years, the core purpose of the …

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Never feel isolated or alone. Call our helpline: 0300 101 0034

Please note: This is an answer phone service that will alert us as soon as a message is left. A member of the team will call you back as soon as possible – we aim to respond to messages within 48 hours.

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Become a Member of The SMS Foundation UK

Connect with SMS families in your region and be the first to receive updates on any social meetings, conferences, and fundraising events going on!

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Registered UK Charity (CIO) 1186647

Scottish Charity (SCIO) SC050921

Registered with the Fundraising Regulator

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