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SMS Foundation UK

Supporting SMS families for a positive future

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We are a small charity that supports families living with Smith-Magenis syndrome (SMS)

Never feel isolated or alone. Call our helpline and leave a message: 0300 101 0034 (we aim to respond to messages within 48 hours).

Newly Diagnosed?

EHCPs

abstract illustration of education planning

Delivery of EHCP Provision for Children with SMS

When we think of therapy, we often imagine one-to-one sessions where a therapist works directly with the child. This can be the case, but we also need a clear understanding of the model of support …

infographic showing the golden thread running through an EHCP

Making the EHCP Work for a Child With SMS

We are all awaiting the government’s next steps on special education and are keen to understand what future changes may come. While the system may shift in the coming years, the core purpose of the …

illustration of education planning symbols

A Guide to EHCP Transitions and Legal Deadlines

Transitions can be difficult for children and young people with special educational needs and disabilities (SEND). The move to a new class, a new teacher, or a new school needs time, planning, and …

illustration of child climbing education charts

School Transition Planning for Children with SMS

Transition planning isn’t just about moving school, it’s about carrying forward everything that’s helped your child thrive and making sure they won’t be left behind.  Why This Matters  The …

illustration of information clipboard and people looking at it

Statement Describing SMS for Assessments and Forms

How this statement can be used: parents and carers may include this statement in applications for DWP benefits (such as PIP), EHCP processes, social care assessments, housing or adaptations requests, …

SEND illustration of teacher and student

EHCPs: A Guide for SMS Parents and Carers

Navigating the Education, Health, and Care Plan (EHCP) process can be confusing and frustrating—especially if you’re caring for a child with Smith-Magenis Syndrome (SMS). The legal language, …

SEND Webinar banner

A Guide to the EHCP Process (Webinar Recording)

Details A guide to navigating the process and pathways in the development of an Education Health and Care Plan (EHCP) for children and young people requiring additional support.  Speaker …

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Webinar: Navigating the Annual Review (PAST EVENT)

What Every Parent and Carer Needs to Know Don’t forget to register for your space to a SEND education webinar hosted by the SMS Foundation UK. The webinar will be taking place …

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Never feel isolated or alone. Call our helpline: 0300 101 0034

Please note: This is an answer phone service that will alert us as soon as a message is left. A member of the team will call you back as soon as possible – we aim to respond to messages within 48 hours.

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Become a Member of The SMS Foundation UK

Connect with SMS families in your region and be the first to receive updates on any social meetings, conferences, and fundraising events going on!

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Registered UK Charity (CIO) 1186647

Scottish Charity (SCIO) SC050921

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