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SMS Foundation UK

Supporting SMS families for a positive future

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We are a small charity that supports families living with Smith-Magenis syndrome (SMS)

Never feel isolated or alone. Call our helpline and leave a message: 0300 101 0034 (we aim to respond to messages within 48 hours).

Newly Diagnosed?

Shining Mega Stars

SMS Awareness 2026

This November, we’re bringing back our Shining Mega Stars campaign to celebrate the wonderful individuals at the heart of our community and raise awareness of Smith-Magenis syndrome. We’re inviting families to share a favourite photo or short video of their person with SMS, together with a few words about what makes them shine. Submissions will be shared throughout November as we build towards Global Smith-Magenis Syndrome Awareness Day on 17 November. Complete the short form below to take part and help us show the personalities, strengths and individuality of people living with SMS.


Please enter your name as contributor
Please enter the name of the individual with SMS
Please choose from the statements below what you'd like to share *
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I confirm that I have permission to share this photo or video and consent to the SMS Foundation UK using it as part of the Shining Mega Stars awareness campaign, including on its website and social media channels.

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Never feel isolated or alone. Call our helpline: 0300 101 0034

Please note: This is an answer phone service that will alert us as soon as a message is left. A member of the team will call you back as soon as possible – we aim to respond to messages within 48 hours.

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Become a Member of The SMS Foundation UK

Connect with SMS families in your region and be the first to receive updates on any social meetings, conferences, and fundraising events going on!

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Registered UK Charity (CIO) 1186647

Scottish Charity (SCIO) SC050921

Registered with the Fundraising Regulator

Copyright © 2021 Smith-Magenis Syndrome (SMS) Foundation UK CIO · Registered Charity Address: 61 High Street, Pewsey, Wiltshire SN9 5AF  
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