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SMS Foundation UK

Supporting SMS families for a positive future

  • What is SMS?
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  • How We Help
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We are a small charity that supports families living with Smith-Magenis syndrome (SMS)

Never feel isolated or alone. Call our helpline and leave a message: 0300 101 0034 (we aim to respond to messages within 48 hours).

Newly Diagnosed?

Family Membership

Join to become a family, or professional, member of The SMS Foundation UK. You will receive updates on any social meetings, conferences, and fundraising events that are going on! Joining is quick, easy, and free!

There are some private/closed groups on social media platforms that are moderated by volunteers and members of the community. There is a generic primary carer’s Facebook group, as well as separate groups for mums and dads on WhatsApp. If you would like to join any of these groups, please contact us. You can also follow us on social media…

  • Facebook
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  • YouTube
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The General Data Protection Regulations, which are a government law, changed on 25th May 2018 and we have got to make sure that any information that we have about you is held correctly so that we can continue being in contact with you. We don’t pass any of your details onto anybody else and we only use personal details to improve our support services. It also means if you call us again, we will have your details to hand. The membership form includes separate sections for each member of the household. Once completed you will receive an email confirming your submission, please check spam folders if you do not receive in your inbox.

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Never feel isolated or alone. Call our helpline: 0300 101 0034

Please note: This is an answer phone service that will alert us as soon as a message is left. A member of the team will call you back as soon as possible – we aim to respond to messages within 48 hours.

  • Facebook
  • Twitter
  • LinkedIn
  • Instagram
  • YouTube
  • Mail

Become a Member of The SMS Foundation UK

Connect with SMS families in your region and be the first to receive updates on any social meetings, conferences, and fundraising events going on!

Family & Carer Membership
Professional Membership

Registered UK Charity (CIO) 1186647

Scottish Charity (SCIO) SC050921

Registered with the Fundraising Regulator

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