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Smith-Magenis Syndrome Foundation UK logo

Smith-Magenis Syndrome Foundation UK

Connecting Families, Raising Awareness, Building Futures

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  • What is SMS?
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    • Frequently asked questions
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  • Spotlight on SMS health
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    • Emergency hospital documents for download
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SMS 1711 Circle Logo

SMS 1711 Circle

Your donation will help us to ensure no one living with SMS feels isolated or alone.  Together, we can help to connect families, raise awareness and build futures.

Become a regular donor

Donating on a regular basis is beneficial for you as it allows you to budget your support. You can spread the cost over a long period, paying smaller amounts on a monthly basis, while still significantly contributing to the vital work of the SMS Foundation. 

What is the SMS 1711 Circle? 

The SMS 1711 Circle is our regular giving club comprised of our dedicated supporters who donate monthly or quarterly to our cause.  A regular donation could help us to pay for the future of our services, and help us connect families, raise awareness and build futures for everyone living with SMS.  

SMS 1711 Circle Logo

Why 1711? 

We have chosen the symbolic 1711 to represent the 17p11.2 gene, referring to the specific piece of genetic material missing from chromosome 17 that leads to an SMS diagnosis. We ask our donors to commit to £7.11 or £17.11 to symbolise our fight in funding better research for the syndrome and supporting our cause to ensure every person with SMS shall have a fulfilling life within a supportive and understanding community. 

The Foundation shall be at the heart of our community for those living and working with SMS and we will be the first point of contact for those seeking information and support. Your donations help to make this a reality. Thank you. 

Become a regular donor

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Join as a family member and we can connect you with families living near you. You will also receive updates of any social meetings, conferences, and fundraising events going on! Joining is quick and easy!

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View the international map of families diagnosed with SMS

Never feel isolated or alone.
Call our helpline: 0300 101 0034
Other ways to Contact Us

Please note: This is an answerphone service that will alert us as soon as a message is left. A trustee will call you back as soon as possible – we aim to respond to messages within 24 hours.

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The Smith-Magenis Syndrome (SMS) Foundation UK CIO

Connecting Families, Raising Awareness, Building Futures

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Proud finalist of Keele University Breaking the Mould awards
SCA Terrific trustee award 2020
NUE Best Student contribution

Registered UK Charity (CIO) 1186647   ·  Scottish Charity (SCIO) SC050921    

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