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SMS Foundation UK

Supporting SMS families for a positive future

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We are a small charity that supports families living with Smith-Magenis syndrome (SMS)

Never feel isolated or alone. Call our helpline and leave a message: 0300 101 0034 (we aim to respond to messages within 48 hours).

Newly Diagnosed?

Great North Run 2022

Date: Sunday 11th September 2022
Location: Newcastle
Event distance: 13.1 miles
Fundraising target: £350 (registration fee £25)

Join Team SMS for the world’s biggest half marathon!

The Great North Run is the world’s largest half marathon with an incredible atmosphere, starting in Newcastle upon Tyne and finishing by the sea in South Shields. It’s a fantastic event for all, whether you’re after a personal best or just wanting to be a part of something special.

Secure a guaranteed place with the SMS Foundation UK by filling in a charity place registration form, or use your ballot place to join the team by following the ‘register your own place’ option.

Join us in 2022 and help us to support families in the UK living with SMS.

Already got a place?

Do you already have a place in the Great North Run 2022? Did you pay an entry fee directly to the event organisers? We’d love you to join the team as your own place runner. You’ll get the same benefits as a Team SMS charity place runner, there just isn’t any fundraising pledge. We simply ask you to raise as much as you can.

To join us with your own place, email Helen Hargrave and she will get in touch to provide you with ‘Team SMS’ support and resources to help you with your run.

SMS running vest and SMS sports drinking bottle

Support for you

By joining Team SMS, you will be helping to support the 300+ families we know to be living with SMS in the UK today. To support you in your fundraising, you will receive:

  • an SMS Foundation UK technical running vest
  • an SMS Foundation UK water bottle
  • a fundraising pack to help take your challenge to the finish line
  • a friendly team here to support you every step of the way

Contact us

Find out more about running for the SMS Foundation UK by contacting us at fundraising@smith-magenis.co.uk

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Never feel isolated or alone. Call our helpline: 0300 101 0034

Please note: This is an answer phone service that will alert us as soon as a message is left. A member of the team will call you back as soon as possible – we aim to respond to messages within 48 hours.

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Connect with SMS families in your region and be the first to receive updates on any social meetings, conferences, and fundraising events going on!

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Registered UK Charity (CIO) 1186647

Scottish Charity (SCIO) SC050921

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